Non-IACC Reports
2012
National Center for Health Statistics Data Brief – Diagnostic History and Treatment of School-aged Children with Autism Spectrum Disorder and Special Health Care Needs [HTML version], (PDF – 624 KB)
National Institute of Mental Health, Centers for Disease Control and Prevention and Health Resources and Services Administration
This report describes the results from a 2011 telephone survey of over 4,000 parents or guardians of a child between the ages of 6-17 who had a confirmed diagnosis of ASD, intellectual disability, and/or developmental delay. These survey interviews were a part of the Pathways to Diagnosis and Services Study, sponsored by NIMH, in collaboration with the CDC National Center for Health Statistics (NCHS) and the HRSA Maternal and Child Health Bureau at the Health Resources and Services Administration (HRSA). Key findings were that most children with ASD were diagnosed after age 5 and that they use multiple services and medications.
Restraint and Seclusion Resource Document (PDF – 1.5 MB)
Department of Education
The U.S. Department of Education issued this Resource Document to provide guidance, and describe fifteen principles that States, school districts, school staff, parents, and other stakeholders may find helpful to consider when States, localities, and districts develop practices, policies, and procedures on the use of restraint and seclusion in schools.
Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring (ADDM) Network, 14 Sites, United States, 2008
MMWR Surveillance Report (Centers for Disease Control and Prevention)
Centers for Disease Control and Prevention
This scientific research report from the CDC describes the background, methodology and results of a study of 2008 autism spectrum disorder prevalence data from the Autism and Developmental Disabilities Monitoring (ADDM) Network, which monitors the number of 8-year-old children with ASDs living in diverse communities throughout the United States.
2012 Centers for Disease Control and Prevention Autism and Developmental Disabilities Monitoring (ADDM) Community Report (PDF – 4 MB)
Centers for Disease Control and Prevention
This report from the CDC provides a lay-friendly summary of the background and results of a study of 2008 autism spectrum disorder prevalence data from the Autism and Developmental Disabilities Monitoring (ADDM) Network, including both compiled information from all sites and a detailed state-by-state breakdown of the information. It also includes sections describing how these data may be used and questions and answers about autism and autism prevalence.
2011
Report to Congress on Activities Related to Autism Spectrum Disorders and Other Developmental Disabilities Under the Combating Autism Act of 2006 (FY 2006-FY 2009) [HTML version], (PDF – 1 MB)
Department of Health and Human Services
This Report to Congress is required by Public Law 109-416, (PDF – 49 KB), the Combating Autism Act of 2006 (CAA). The report describes progress and expenditures made in autism spectrum disorder (ASD) research and services activities since the enactment of the CAA. Read the Full Report | Read the Summary and Highlights
Centers for Medicare & Medicaid Services
This report, released on April 1, 2011, assesses the implementation of evidence-based/promising practices through the lens of state experience, summarizing the current state of ASD-related services in Arizona, California, Connecticut, Indiana, Maine, Missouri, New Mexico, Pennsylvania, and Wisconsin. The report describes the types of services and supports provided by state and local governments; the sources of funding for programs; and the policy, staffing and implementation issues to be addressed to effectively serve people with ASD.
2010
Autism Spectrum Disorders (ASDs) Services: Final Report on Environmental Scan 
(PDF – 2 MB)
Centers for Medicare & Medicaid Services
This report describes the results of a comprehensive review of scientific evidence regarding the efficacy, effectiveness, safety, and availability of ASD-related psychosocial services and supports for children, transitioning youth, and adults with ASD, including data on the evidence based interventions for people with ASD across the lifespan and data on the costs associated with providing services to people with ASD.
2009
Biennial Report of the Director, National Institutes of Health, Fiscal Years 2008 & 2009
National Institutes of Health
This is the second NIH Biennial Report submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB). The report serves as a useful reference for understanding NIH activities and operations and includes information about NIH programs related to autism research.
National Institutes of Health
This is the Report to Congress on the NIH Autism Centers of Excellence for Fiscal Years 2008 & 2009, required in Section 404H of the Combating Autism Act of 2006 (Public Law 109-416, PDF – 49 KB). This report is included as a chapter in the NIH Biennial Report for Fiscal Years 2008 & 2009, submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB).
2007
Biennial Report of the Director, National Institutes of Health, Fiscal Years 2006 & 2007
National Institutes of Health
This is the first NIH Biennial Report submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB). The report serves as a useful reference for understanding NIH activities and operations and includes information about NIH programs related to autism research.
National Institutes of Health
This is the Report to Congress on the NIH Autism Centers of Excellence for Fiscal Years 2006 & 2007, required in Section 404H of the Combating Autism Act of 2006 (Public Law 109-416, PDF – 49 KB). This report is included as a chapter in the NIH Biennial Report for Fiscal Years 2006 & 2007, submitted to Congress under the requirement established by Section 104 of the NIH Reform Act (Public Law 109-482, PDF – 178 KB).
2006
Federal Autism Activities: Funding for Research Has Increased, but Agencies Need to Resolve Surveillance Challenges (PDF – 882 KB)
Government Accountability Office
This report provides information on (1) the National Institutes of Health's (NIH) and the Centers for Disease Control and Prevention's (CDC) autism activities and these agencies' funding of autism activities, (2) programs that federal agencies have under way to support services for people with autism and concerns related to providing services, and (3) coordination of federal autism activities.
2005
Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
Government Accountability Office
This report describes the trend in the number of children diagnosed with autism served under IDEA, the services provided to these children, the estimated per pupil expenditures for educating children with autism, and approaches to their education.
2004
Report to Congress on Autism Activities Under the Children's Health Act of 2000 (Fiscal Year 2004)
Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
2003
Report to Congress on Autism Activities Under the Children's Health Act of 2000 (Fiscal Year 2003)
Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
Department of Health and Human Services and Department of Education
Complementing the activities of the IACC, the Department of Health and Human Services and the Department of Education sponsored an Autism Summit Conference. The summit provided a public forum to disseminate, evaluate, and integrate the latest practice- and science-based autism information among Federal, academic, and community participants. The summit included keynote addresses from public officials and sessions focused on issues such as implementation of optimal services, early screening and diagnosis, and biomedical research.
2002
Report to Congress on Autism Activities Under the Children's Health Act of 2000 (Fiscal Year 2002)
Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
2001
Department of Health and Human Services
This report reflect DHHS annual activities pertinent to Division A, Title I of the Children's Health Act of 2000, which include: Section 101 — Expansion, intensification, and coordination of activities of the National Institute of Health (NIH) with respect to research on autism; Section 102 — Developmental disabilities surveillance and research programs; Section 103—Information and education; and Section 104 — Interagency Autism Coordinating Committee. Section 105 of the Act requires the Secretary of HHS to submit an annual report to Congress "concerning the implementation of this title and the amendments made by this title".
