PROMIS: Patient-Reported Outcomes Measurement Information System

Program Snapshot

The Common Fund’s Patient-Reported Outcomes Measurement Information System (PROMIS) program is creating new paradigms for how clinical research information is collected, used, and reported. PROMIS addresses a need in the clinical research community for a rigorously tested patient reported outcome (PRO) measurement tool that utilizes recent advances in information technology, psychometrics, and qualitative, cognitive, and health survey research to measure PROs such as pain, fatigue, physical functioning, emotional distress, and social role participation that have a major impact on quality-of-life across a variety of chronic diseases.

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Program Highlights

PROMIS Seen as a National Model for Patient Reported Health Measures

According to a recent article from The Commonwealth Fund’s Quality Matters publication, The NIH Common Fund’s Patient-Reported Outcomes Measurement Information System (PROMIS) program has been setting a standard for the development and validation of patient-reported outcomes measures (PROMs) for patients with an array of diseases and conditions.



Program Highlights

New Website Promotes Tools to Measure Health Outcomes from the Patient Perspective
The Patient–Reported Outcome Measurement Information System (PROMIS®), funded by the NIH Common Fund, provides clinicians and researchers access to adult– and child–reported measures of health and well–being. PROMIS® recently launched a redesigned website that provides tailored information for researchers, clinicians, and patients on the latest research results and recommendations. Featured on the site are instruments and measures, software, methodology, data, publications, research centers, and many other resources.

Click here to see the new PROMIS® website Exit Disclaimer

PROMIS network structure 2009-2013
Diagram of the PROMIS network structure

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Division of Program Coordination, Planning, and Strategic Initiatives  •  National Institutes of Health  •  Bethesda, Maryland 20892