I N A N C I N G ENTER O F EXCELLENCE ev. March 1 6 , 2010 2 SAMHSA Financing COE 226 Inventory of Datasets FCr Mo nitoring the Future (MTF) ................................................................................................................................................................................ 19 National Comorbidity Survey (NCS) and National Comorbidity Replication (NCS- R) ........................................................................................... 20 National Drug Abuse Treatment Clinical Trials Network (CTN) ............................................................................................................................ 20 National Epidemiologic Survey on Alcohol and Related Conditions (NESARC) .................................................................................................... 20 National Health Accounts (NHA) ........................................................................................................................................................................... 22 National Health and Nutrition Examination Survey (NHANES) ............................................................................................................................ 22 National Health Care Surveys (NHCS) ................................................................................................................................................................... 23 National Health Interview Survey (NHIS) .............................................................................................................................................................. 24 National Hos pital Discharge Survey (NHDS) ......................................................................................................................................................... 25 National Long Term Care Survey (NLTCS) ............................................................................................................................................................. 25 National Survey of Substance Abuse Treatment Services 226 (N - SSATS) ................................................................................................................ 26 National Survey on Drug Use & Health (NSDUH) formerly the National Household Survey on Drug Abuse (NHSDA) ....................................... 26 Nat ional Trauma Data Bank (NTDB) ..................................................................................................................................................................... 27 Provider data, Hospital data, Pharmacy data ....................................................................................................................................................... 27 SAMHSA National Spending Estimates ................................................................................................................................................................. 28 Service Annual Survey ........................................................................................................................................................................................... 28 State Profile Highlights .......................................................................................................................................................................................... 29 Substance Abuse and M ental Health Data Archive (SAMHDA) ............................................................................................................................ 29 Substance Abuse Information Database (SAID) .................................................................................................................................................... 29 Survey on Income and Program Participation (SIPP) ............................................................................................................................................ 30 State Health Facts ................................................................................................................................................................................................. 30 The Youth Risk Behavior Surveillance System (YRBSS) ......................................................................................................................................... 30 Treatment Episode Data Set (TEDS) ..................................................................................................................................................................... 31 F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 3 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Alcohol and Other Drug (AOD) - Related Databases NIAAA A gateway website to numerous datasets including substance use during pregnancy and alcohol related violence and injury. Databases Covering Alcohol Related Resear ch: ALAC Library Catalogue ALAC Research Database Alcohol Concern Library Database Alcohol Control Database Alcohol History Database Alcohol Industry Database Alcohol Policy Information System (APIS) Alcohol - Related Injury and Violence Literature Database Alcohol Studies Database Global Alcohol Database National Database of FAS and Substance Use During Pregnancy Resources Databases Covering General Substance Abuse: Center for Addiction and Mental Health Library Cork Database Database of the Canadian Centre on Substance Abuse Drug Database Drug Policy Alliance European Legal Database on Drugs Evaluation Instruments Bank N/A DW Garnick, MT Lee, D Gastfriend, CM Horgan, F McCorry, AT McLellan and EL Merrick. (2002). Establishing the feasibility of performance measures for alcohol and other d rugs . Journal of Substance Abuse Treatment , 23(4 ): 375- 385. F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 6 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Reporting System Output Table Developmental tables) that SMHAs submit each December in their Community Mental Health Services Block Grant Implementation Report to CMHS. Provides standardized state level data on access to se rvices, services settings, self - reported outcomes, and expenditures for mental health block grants. Meas ures of homeless persons served Admission rates L engt h of stay in inpatient programs T reatment of persons with co - occurri ng mental health and substance abuse disorders Outcomes Tables : E mployment stat us of consumers served by SMHAs; self- report on the outcomes from services Structure Domain Tables : E xpen ditures and funding sources of state mental health agencies How s tates expend their mental health block grant funds inc.org/projects/SDICC/Reports/ NOMAndURSPPT2005.pdf http://www.nri - inc.org/projects/SDICC/Reports/ LocalProviderIssuesPPT2006.pdf Current Population Surve y (CPS) Census Bureau The CPS is a monthly survey of about 50,000 households co nducted by the Bureau of the Census for the Bureau of Labor Statistics and serves as the primary source of information on the labor force characteristics of the U.S. population. The sample is scientifically selected to represent the civilian noninstitutional population. Respondents are interviewed to obtain information about the employment status of each member of the household 15 years of age and older. However, published data focus on those ages 16 and over. The sample provides Labor force characteristics of U.S. population, including: Employment Unemployment Earnings Hours of work Demographic characteristics (age, sex, race and marital status) JA Klerman, M Davern, KT Call, V Lynch, JD Ringel. (2009). Understanding the Current Population Survey222s Insurance Estimates and the Medicaid 221Undercount.222 Health Affairs , 28(6): w991- w1001. DR Shopland, KK Gerlach, DM Burns, AM Hartman, JT Gibson. F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 7 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable estimates for the nation as a whole and serves as part of model - based estimates for individual states and other geographic areas. Educational attainment, Occupation Industry, Class of worker School enrollment Income Previous work experience Health employee benefits Work schedules (2001). State Specific Trends in Smoke Free Workplace Policy Coverage: The Current Population Survey Tobacco Use Supplement, 1993- 1999. Journal of Occupational and Environmental Medicine , 43(8): 680- 686. JM Mellor, J Milyo. (2002). Income Inequality and Health Status in the United States: Evidence from the Current Population Survey. The Journal of Human Resources , 37(3): 510- 539. Drug Abuse Warning Network (DAWN) SAMHSA A public health surveillance system that monitors drug - related hospital emergency department (ED) visits and drug - related deaths to track the impact of drug use, misuse, and abuse in the U.S. Drug- related hospital - emergency department visits Drug- related deaths Illegal drugs of abuse P rescription a nd over - the - counter medications Dietary supplements N on - pharmaceutical in halants A lcohol in combination with other drugs (adults and c hildren) A lcohol alone (age < 21). DE Joranson, KM Ryan, AM Gilson , JL Dahl (2000). Trends in Medical Use and Abuse of Opioid Analgesics JAMA. 283(13): 1710- 1714. EP Schoener. (2002). Injection Drug Use in North America. Infect Dis Clin North Am, 16(3): 535- 51, vii. Economic Census Census The economic census profiles U.S. national and local Core business statistics in RA Cooper, TE Getzen, HJ F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 8 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Bureau economies every 5 years. Most economic census data are released over time in a series of related data sets through American FactFinder . The Economic Census provides the following data series and datasets and surveys : The Core Business Statistics Series is made up of data sets that cover multiple ind ustries including the Advance Report, Bridge Between 2007 NAICS and 2002 NAICS Reports, Comparative Statistics Report and Franchising Report. The Geographic Area Series contains data for individual industries at the U.S., state, county, place and metropoli tan area levels. The Subject and Summary Series includes summary data on special topics and industry - related data including Product Lines, Concentration Ratios and Establishment and Firm Size at the U.S. level and in some data sets, at the same level. The ZIP Code Statistics Series contains counts of establishments by sales - size range by industry for 5 - digit ZIP Codes (published for the Retail Trade and Selected Services sectors). Economy - Wide Key Statistics is a data set that is continually built as other data sets are released from multiple industries Geographic location and ZIP codes Product lines Concentration ratios Establishment/firm size Sales - size range Value of sales, shipments, receipts, revenue or business done Payroll Number of employees McKee, P Laud. (2002). Economic and Demographic Trends Signal an Impending Physician Shortage . Health Affairs , 21(1): 140- 154. F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 9 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable March 2009 to October 2010 that presents four key statistics for every available industry and geographic area published to date: number of establishments, value of sales, shipments, receipts, revenue or business done, annual payroll and number of employees. Commodity Flow Survey has data on the movement of goods in the U.S. Economic Census of Island Areas provides a detailed portrait of the economic structure and activity of Puerto Rico, American Samoa, Guam, Northern Mariana Is lands and the U.S. Virgin Islands every five years. Survey of Business Owners has data on U.S. business owners by gender, Hispanic or Latino origin and race. It also includes additional demographic and economic business characteristics for home - based, fami ly - owned and franchised businesses; sources of finance; types of customers; and year established. Annual Survey of Manufacturers contains sample estimates of statistics for all manufacturing establishments with one or more paid employee. County Business Pa tterns includes annually produced data sets that provide detailed geographic, industry and other data for U.S. business establishments with paid employees. F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 11 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Published jointly with the National Governors Association twice a year in the spring and fall. Medicaid expenditures Estimates of uninsured McFeeters. (2007). Restoring Fiscal Integrity to Medicaid Financing? Health Affairs 26(5): 1469- 1480. Health and Retirement Study (HRS) NIA/NIH Collects information on physical and mental health, insurance coverage, financial status, family support systems, labor market status, and retirement planning. The HRS is a national survey of more than 22,000 Americans over the age of 50 every two years. The 2004 survey included: Demographics Household information Physical health Cognition Family structure Functional limitations Helpers Housing Employment D isability Health services Insurance Assets Income Asset change Widowhood Divorce Wills Li fe insurance. Growing Older in America: The Health and Retirement Study http://hrsonline.isr.umich.edu/n ews/sho_news.php?hfyle=news 234&xtyp=1 T Ostbye, DH Taylor, WS Yanc y, Jr, S William, Jr, KM Krause. (2005) . Associations Between Obesity and Receipt of Screening Mammography, Papanicolaou Tests, and Influenza Vaccination: Results from the Health and Retirement Study (HRS) and the Asset and Health Dynamics Among the Oldes t Old (AHEAD) Study. Am J Public Health, 95: 1623- 1630 Healthcare Cost and Utilization Project (HCUP) AHRQ A collection of databases, tools, and software. HCUP databases contain a core set of clinical and nonclinical information found in a typical discharge abstract. The information is translated into a uniform format to facilitate both multistate and national - State comparisons and analyses. All - listed diagnoses Procedures Discharge status Patient demographics C harges for all patients WE Encinosa, DM Bernard, CA Steiner, and CC Chen. (2005) . Use And Costs Of Bariatric Surgery And Prescri ption Weight - Loss Medications. Health Affairs , F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 13 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable 20 and younger from nea rly 3,500 U.S. community hospitals. Healthcare for Communities (HCC) UCLA/RAND NIMH Center for Research on Quality in Managed Care; Robert Wood Johnson Collects data from households, employers, and public ag ency administrators with secondary data sources using a nationally representative sample (9,585 respondents) with a large percentage of persons with ADM need in the areas of: health and daily activities, mental health, alcohol and drugs, and health insuran ce. Wave I fielded October 1997 through December 1998 Wave II fielded in 2000- 2001 Health And Daily Activities : Gener al health and daily activities Depression Chronic conditions Height/weight Mental Health : Generalized anxiety disorder Depression Lifetime mania Psychoticism screener Panic screener Alcohol And Drugs : Alcoholism screener Drug abuse and dependency Recent drug use Medications Health insurance : Access, utilization, quality of care barriers and satisfaction L abor market, income and wealth Life stress/ victimization, JB Braden, L Zhang, FJ Zimmerman, MD Sullivan. (2008) . Employment Outcomes of Persons With a Mental Disorder and Comorbid Chronic Pain. Psychiatr Serv, 59: 878- 885 D Mechanic, S Bilder. (2004). Treatment Of People With Mental Illness: A Decade - Long Perspective. Health Affairs , 23(4): 84 - 95. Y Bao, R Sturm, TW Croghan. (2003) A National Study of the Effect of Chronic Pain on the Use of Health Care by Depressed Person s. Psychiatr ic Serv ices , 54: 693- 697 F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 14 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable crime, community violence Alternative medicine HIMSS Analytics Database ( membership required ) HIMSS Analytics Contains market share data from over 5000 hospitals for over 130 software applications and technologies, market segmentation and sizing statistics to evaluate opportunities across the U.S., healthcare provider software and hardware purchasing plan information, and identifies hospitals with major capital building projects JP Harrison, C Palacio. (2006) . The Role of Clinical Information Systems in Health Care Quality Improvement. Health Care Manage, 25(3): 206- 212. MF Furukawa, T.S. Raghu, TJ Spaulding, A Vinze. (2008) . Adoption Of Health Information Technology For Med ication Safety In U.S. Hospitals, 2006. Health Affairs , 27(3): 865- 875. HIV Cost and Services Utilization Study (HCSUS) Rand for AHRQ Collected information on a nationally representative sample of people in care for HIV infection. The original study was active from September 1994 to October 2000. Usual Sou rce of Care and Access to Care Tests and Staging Symptoms and Treatm ent Insurance Utilization Resident ial History and Current Health Quality of Life Social Support and Coping Unmet Needs Mental Health Patient Description Knowledge Contact and Tracking EG Bing, MA Burnam, D Longshore, et al. (2001) . Psychiatric Disorders and Drug Use Among Human Immunodeficiency Virus - Infected Adu lts in the United States. Archives of General Psychiatry , 58: 721- 728. LW Bogart, RL Collins, W Cunningham, et al. (2005) . The Association of Partner Abuse with Risky Sexual Behaviors Among Women and Men with HIV/AIDS. AIDS and Behavior , 9(3) : 325- 329. F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 15 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Information IMS Health IMS Health Contains information tracking and analysis on the healthcare market, including global healthcare decisions, patient - centered disease and treatment insights, specialty products, emerging markets, cost and pricing challenges, patient trends, medical devices and diagnostic trends, generic drug and over - the - counter markets, disease and treatment patterns and top - line industry data. IMS MIDAS is the world222s largest pharmaceutical information resource and tracks virtually every pharmaceutical product in hundreds of therapeutic classes. Top - Line Industry Data includes information on U.S. and global pharmaceutical trends for use in story development or vital health research initiatives. Data includes info rmation on leading companies, products, therapeutic classes, channels of distribution, prescription sales and dispensing. Companies and Market Information Drug information Forecasting analytics Patients Diseases Treatment Pricing and reimbursement Sales i nformation A Murray, ER Berndt, DM Cutler. (2009). Prescription Drug Spending Trends in the United States: Looking Beyond the Turning Point. Health Affairs , 28(1): w151- w160. Kaiser/HRET Employer Health Be nefits Survey Kaiser Family Foundation An annual survey detailing how employer coverage is changing over time in terms of availability, costs, and coverage for the 158 million people nationally who rely on employer - sponsored health insurance. The 2007 survey included 3,078 randomly selected, non - federal public and private firms with three or more employees. Empl oyer - sponsored health coverage Premiums Employee contributions and cost - sharing G Claxton, J Gabel, B DiJulio, J Pickreign, H Whitmore, B Fin der, P Jacobs, S Hawkins. (2007) . Health Benefits In 2007: Premium Increases Fall To An Eight - Year Low, While Offer Rates And Enrollment Remain Stable. Health Affairs , 26(5): 1407- 1416. MarketScan Thomson Fully integrated, de - identified, individual - level healthcare Co mmercial Claims and Encounters R Figueroa, J Harman, J Engberg. (2004) . Use of Claims Data to F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 16 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Rheuters claims data T op - line prevalence Cost Demographics Clinical Utilization statistics Counts Clinical and utilization statistics for se lected samples of pat ients Diagnosis and procedure volumes for inpatient care and outpatient settings Examine the Impact of Length of Inpatient Psychiatric Stay on Readmission Rate. Psychiatr ic Serv ices , 55: 560- 565. Medicaid Analytic Extract (MAX) formerly the State Medicaid Research Files (SMRFs) CMS A set of person - level data files on Medicaid eligibility, service utilization, and payments in annual calendar year files. Personal summ ary Inpatient, long - term care, drug , and other therapy data sets Eligibility and utilization records CMS - 64, 37, 21 reports M Olfson, SC Marcus, D Shaffer. (2006) . An tidepressant Drug Therapy and Suicide in Severely Depressed Children and Adults: A Case - Control Study. Arch Gen Psychiatry , 63(8): 865- 872. The Medicaid Analytic Extract Chartbook: http://www.cms.hhs.gov/Medic aidDataSourcesGenInfo/Downlo ads/MAX_Chartbook_2007.pdf C Dimaggio, S Galea, LD Richardson. (2007). E mergency Department Visits for Behavioral and Mental Health Care After a Terrorist Attack. Annals of Em ergency Medicine, 50(3): F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 18 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable particular workplace or location and sample sizes for are broken out by single and multiunit establishments. The State and Local Government sample is drawn annually from the most recently available Census of Governments. This sample is drawn at the governmental unit level, which is defined as all sites under a single controlling governmental entity. There are 27, 214 single unit establishments, 11,964 multiunit establishments and 3,015 government units in the 2006 sample. Medical Statistical Information System (MSIS) CMS Collects manage, analyzes and disseminates information on eligibles, beneficiaries, utilization, and payment for servic es covered by State Medicaid programs. Each state eligible file contains one record for each person covered by Medicaid for at least one day during the reporting quarter. Since the Balanced Budget Act (BBA) of 1997, all claims submitted to CMS are process ed electronically through MSIS.MSIS data are used by CMS to produce Medicaid program characteristics and utilization information for states. These data also provide CMS with a large - scale database of state eligibles and services. Individual eligible recor ds: Demographic, monthly enrollment data. Paid claims files : adjudicated medical service related claims and capitation payments. Four types of claims files representing inpatient, long term care, prescription drugs and non- institutional services are subm itted by the states. Claims records : Types of services provided Providers of services Service dates Costs Types of reimbursement Epidemiological variables JT Zerzan, N Morden, S Soumerai, D Ross - Degnan, E Roughead, F Zhang, L Simoni - Wastila, SD Sullivan. (2006) Trends and Geographic Variation of Opiate Medication Use in State Medicaid Fee - For - Service Programs, 1996 to 2002. Medical Care, 44(11):1005- 1010. J Holahan, A Ghosh. (2005) Understanding The Recent Growth In Medicaid Spending, 2000- 2003. Health Affairs Web Exclusive, January 26. Medicare Cost Reports CMS Provides online Medicare cost report data for over 6,000 hospitals. The database is built from Medicare cost report Includes every data element included in the HCRIS extract CL Leibson, SK Katusic, WJ Barbaresi, R Ransom, PC F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 20 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable correlates of illicit methylphenidat e use among 8th, 10th, and 12th grade students in the United States, 2001. Journal of Adolescent Health , 35(6):501 - 504. National Comorbidity Survey (NCS) and National Comorbidity Replication (NCS - R) Ha rvard University The first nationally representative mental health survey in the U.S. to use a fully structured research diagnostic interview to assess the prevalence222s and correlates of DSM - III - R disorders. The baseline NCS was fielded from the fall of 1 990 to the spring of 1992, and respondents were re - interviewed in 2001- 02 (NCS- 2) to study patterns and predictors of the course of mental and substance use disorders and to evaluate the effects of primary mental disorders in predicting the onset and course of secondary substance disorders. In conjunction with this, an NCS Replication survey (NCS - R) was carried out in a new national sample of 10,000 respondents N/A RC Kessler, P Berglund, O Demler, R Jin, D Koretz, KR Merikangas, AJ Rush, EE Walters, PS Wan g . (2003) . The Epidemiology of Major Depressive Disorder: Results From the National Comorbidity Survey Replication (NCS - R). JAMA , 289:3095- 3105. PS Wang, M Lane, M Olfson, HA Pincus, KB Wells, RC Kessler. (2005) . Twelve - Month Use of Mental Health Services in the United States: Results From the National Comorbidity Survey Replication. Arch ives of General Psychiatr y , 62(6): 629- 40. National Drug Abuse Treatment Clinical Trials Network (CTN) NIDA Provi des an enterprise in which the National Institute on Drug Abuse, treatment researchers, and community- based service providers cooperatively develop, validate, refine, and deliver new treatment options to patients in community - level clinical practice . N/A http://www.drugabuse.gov/CTN /Research.html National NIAAA A longitudinal survey on alcohol, tobacco, drugs, and Backgr ound BF Grant, FS Stinson, DA F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 21 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Epidemiologic Survey on Alcohol and Related Conditions (NESARC) related conditions with its first wave of interviews fielded in 2001- 2002 and second wave in 2004- 2005. The NESARC is a representative sample of the non - institutionalized U.S. population 18 years of age and older. Public use data are currently available for the first wave of data collection. Alcohol consumption Alcohol abuse and dependence Alcohol treatment utilization Family history of alcohol ism Tobacco use and dependence Medicine use Drug ab use and dependence Drug treatment utilization Family history of drug abuse Major dep ression Fami ly history of major depression Dysthymia Mania and hypomania Panic disorder and agoraphobia Social phobia Specific phobia Anxiety disorder Personality disorde rs A ntisocial personality disorder Family history of antisocial personality disorder Pathologica l gambling Medical conditions Dawson, SP Chou, MC Dufour, W Compton, RP Pickering, K Kaplan. (2004). Prevalence and Co - occurrence of Substance Use Disorders and Independent Mood and Anxiety Disorders: Results From the National Epidemiologic Survey on Alcohol and Related Conditions. Arch Gen sychiatry 61:807- 816. DS Hasin, BF Grant. (2004) . The Co - occurrence of DSM - IV Alco hol Abuse in DSM - IV Alcohol Dependence: Results of the National Epidemiologic Survey on Alcohol and Related Conditions on Heterogeneity That Differ by Population Subgroup. Archives of General Psychiatry , 61:891- 896. F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 22 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable V ictimization National Health Accounts (NHA) CMS Provides information and research on spending for health care in the U.S. Annual health spending by type of service and source of funding, including : Dental Services Durable Medical Equipmen t Home Health Care Hospital Care Nursing Home Care Other Personal Health Care Other Professional Services Out - of - Pocket Payments Population Physician and Cli nical Services Prescription Drugs an d Non- Durable Medical Products Private Health Insurance M Har tman , C Smith, S Heffler, M Freeland. (2006). Monitoring health spending increases: incremental budget analyses reveal challenging tradeoffs. Health Care Finance Rev, 28(1):41- 52. N DeParle. (2005). How Policymakers Use the National Health Accounts, Prepa red for the CMS Conference on National Health Accounts, April. http://www.cms.hhs.gov/Nation alHealthExpendData/downloads /confpaperdeparle.pdf National Health and Nutrition Examination Survey (NHANES) CDC A program of studies designed to assess the health and nutritional status of adults and children in the United States. The survey examines a nationally represe ntative sample of about 5,000 persons each year. These persons are located in counties across the country, 15 of which are visited each year. NHANES interview includes : Demographics Socioeconomic factors Dietary factors Health - related questi ons Examinat ion component includes : Medical, dental, a nd physiological measure ments Laboratory tests Mental health and drug and CU Onyike, RM Crum, HB Lee, CG Lyketsos, WW Eaton. (2003) . Is Obesity Associated with Major Depression? Results fr om the Third National Health and Nutrition Examination Survey. Am erican Journal of Epidemiology , 158: 1139- 1147. F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 24 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable the survey. Federal, military, and VA hospitals, and prison hospitals), and hospitals with fewer than 6 beds staffed for patient use, are excluded. In 20 05, approximately 375,000 inpatient records were obtained from 444 hospitals. The National Survey of Ambulatory Surgery (NSAS): surveys ambulatory surgery visits collecting data from hospital - based and freestanding ambulatory surgery facilities. The 2006 survey has detailed data on facility characteristics. The National Home and Hospice Care Survey (NHHCS): is a continuing series of surveys of home and hospice care agencies in the United States. The NHHCS is based on a probability sample of home health agencies and hospices. The survey includes all agencies that are licensed or certified by Medicare or Medicaid. The National Nursing Home Survey (NNHS): is a continuing series of national sample surveys of nursing homes, their residents, and their staff. All nursing homes included in this survey had at least three beds and were either certified by Medicare or Medicaid or had a state license to operate as a nursing home. National Health Interview Survey (NHIS) CDC The principal source of information on the health of the civilian non - institutionalized population of the United States covering the amount, distribution, and effects of illness and disability in the United States and the services rendered for or because of such conditions. N/A BF Grant. (1997). Prevalence and Correlates of Alcohol Use and DSM - IV Alcohol Dependence in United States: Results of the National Longitudinal Alcohol F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 25 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Online access is available to all files from 1963- 200. In addition, corrected condition files are available from 1982- 1994. Epidemio logy Survey. Journal of Studies on Alcohol , 58(5): 464- 473. National Hospital Discharge Survey (NHDS) CDC A national probability survey of inpatients discharged from non - Federal sho rt - stay hospitals in the United States. The NHDS collects data from a sample of approximately 270,000 inpatient records acquired from a national sample of about 500 hospitals. Only hospitals with an average length of stay of fewer than 30 days for all patients, general hospitals, or children222s general hospitals are included in the survey. Federal, military, and Department of Veterans Affairs hospitals, as well as hospital units of institutions (such as prison hospitals), and hospitals with fewer than six be ds staffed for patient use, are excluded. Two collections are used: one is a manual system in which sample selection and medical transcription from the hospital records to abstract forms is performed by the hospital222s staff or by staff of the U.S. Bureau of the Census on behalf of NCHS. The other data collection procedure is an automated system in which NCHS purchases machine - readable medical record data from commercial organizations, State data systems, hospitals, or hospital associations. Age Sex Race Et hnicity M arital status Expected sources of payment Admission and discharge dates Discharge status D iagnoses P rocedures coded to ICD -9 Other medical information HLF Cooper, JE Brady, D Ciccarone, B Tempalski, K Gostnell, SR Friedman. (2007). Nationwide Inc rease in the Number of Hospitalizations for Illicit Injection Drug Use 226 Related Infective Endocarditis. Clinical Infectious Diseases, 45(9): 1200- 1203. MG Foreman, DM Mannino, M Moss. (2003) Cirrhosis as a Risk Factor for Sepsis and Death: Analysis of the National Hospital Discharge Survey. Chest, 124: 1016- 1020. National Long Term Care Survey (NLTCS) NIA/Duke University A longitudinal survey designed to study changes in the health and functional status of older Americans (aged 65+). The survey also tracks health expenditures, Medicare service use, and the availability of personal, family, and community resources for care giving. The survey began in 1982, and follow - up surveys were Demographics ADL222s IADL222s Alcohol and substance use Mental health condition Caregivers, payment JJ Cochrane, PN Goering, JM Rogers. (1999). The M ental H ealth of I nformal C aregiver s in Ontario: an E pidemiological S urvey. American Journal of Public Health , 87(12): 2002- F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 27 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable State level data S Lipsky, R Caetano. (2007) . The Role of Race/Ethnicity in the Relationship Between Emergency Department Use and Intimate Partner Violence: Findings From the 2002 Nati onal Survey on Drug Use and Health. Am J Public Health, 97: 2246- 2252. National Trauma Data Bank (NTDB) American College of Surgeons The largest aggregation of trauma registry data ever assembled including over 2 million records from trauma centers in the U.S. and Puerto Rico. Name Demographics Injury, Pre - hospital Emergency department Hospital procedure Diagnosis Injury severity Outcome Financial Quality assurance M Crandall, F Luchette, TJ Esposito, M West, M Shapiro, E Bulger, M Brandt. (2007) . Attempted Suicide and the Elderly Trauma Patient: Risk Factors and Outcomes. Journal of Trauma- Injury Infection & Critical Care, 62(4):1021- 1028. K Modjarrad, G McGwin Jr., J Cross, L Rue III. (2007) The de scriptive epidemiology of intentional burns in the United States: An analysis of the National Burn Repository. Burns , 33(7): 828 226 832. Provider data, Hospital data, Pharmacy data Ingenix Ingenix benefits modelin g using real claims files; Hospital room rates Physician fees Reimbursement rates Claims data Stein, B. & Zhang, W. (2003). Drug and alcohol treatment among privately insured patients: rate of specialty substance abuse treatment and F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 28 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable association with cost - sharing. Drug and Alcohol Dependence, 71(2), 153- 159. Yu, W., Ravelo, A., Wagner, T. H., & Barnett, P. G. (2004). The Relationships Among Age, Chronic Conditions, and Healthcare Costs. The American Journal Of Managed Care, 10(12), 909 - 916. SAMHSA National Spending Estimates 1993- 2003 1991- 2001 SAMHSA Provides national spending estimates for mental health (MH) services and substance abuse (SA) treatment. The MH/SA estimates are derived from the national health expenditures (the National Health Accounts for all health) that are developed by the Centers for Medicare and Medicaid Services (CMS). The estimates are created for mental health (MH), substance abuse (SA), and MHSA combined, and are compared with all health care expenditures. Expenditure data for Mental Health a nd Substance Abuse TL Mark, RM Coffey. (2003) . What Drove Private Health Insurance Spending On Mental Health And Substance Abuse Care, 1992226 1999? Health Affairs , 22(1): 165- 172. Service Annual Survey Census Bureau The Service Annual Survey produces the most comprehensive data available on service activity in the U.S. It provides estimates of revenue and other measures for most traditional service industries. Operating rev enue for both taxable and tax - exempt firms and organizations Sources of revenue and expenses by type for selected industries Operating expenses for tax - exempt firms Selected industry- specific items N/ A or we can link to: https://ask.census.gov/cgi - bin/askcensus.cfg/php/enduser/ std_adp.php?p_faqid=8373&p_c reated=1242392789&p_sid=qgY *e*Wj&p_accessibility=0&p_red irect=&p_srch=1&p_lva=&p_sp= cF9zcmNoPTEmcF9zb3J0X2J5PS ZwX2dyaWRzb3J0PSZwX3Jvd19j bnQ9NjAsNjAmcF9wcm9kcz0mc Comment [KG1]: I couldn222t find a relevant source that explicitly used this data F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 29 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable E- commerce data for all industries Export and inventory da ta for selected industries F9jYXRzPSZwX3B2PSZwX2N2PSZ wX3BhZ2U9MSZwX3NlYXJjaF90Z Xh0PXF1YXJ0ZXJseSBzZXJ2aWNlI HN1cnZleQ!!&p_li=&p_topview =1 State Profile Highlights NASMHPD - NRI Provides the latest and most complete information on the activities of the State Mental Health Agencies (SMHAs) including descriptions of each SM HA. Organization and structure Services Eligible populations Emerging policy issues Numbers of consumer served Fiscal resources Consumer issues Information management systems Research and evaluation http://www.nri - inc.org/projects/Profiles/highlig ht.htm Substance Abuse and Mental Health Data Archive (SAMHDA) SAMHSA Holdings consist mainly of data derived from surveys and administrative records. The SAMHDA data holdings contain over 120 studies and 425 downloadable data files with annual data on drug use, mental health, treatment admissions, services, and characteristics. SAMHDA is an initiative of the Office of Applied Studies, Substance Abuse and Mental Health Services Administration (SAMHSA) based at the Inter - university Consortium for Political and Social Research (ICPSR). Drug use Health Mental health T reatment admissions T reatment facility services and characteristics D rug use among youth http://www.icpsr.umich.edu/SA MHDA/using - data/publications.html Substance Abuse Information Database (SAID) Department of Labor Provides information about and access to documents and resources on workplace substance abuse issues. SAID includes sample policies, research reports, training and educational materials, and legal and re gulatory N/A MG Wilson, PB Holman, A Hammock. (1996). A Comprehensive Review of the Effects of Worksite Health Promotion on Health - Related F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 30 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable information. Outcomes. American Journal of Health Promotion, 10(6): 429- 435. Survey on Income and Program Participation (SIPP) Census Bureau Provides accurate and comprehensive information about the income and program participation of individuals and households in the United States, and about the principal determinants of income and program participation. SIPP offers detailed information on cash and noncash income on a sub - annual basis. The survey also collects data on taxes, assets, liabilities, and participation in government transfer programs. SIPP data allow the government to evaluate the effectiveness of federal, state, and local programs. Poverty Income Employment Health insurance coverage Demographic characteristics (work experience, earnings, program participation, transfer income and asset income) http://www.census.gov/sipp/pu bs.html State Health Facts Kaiser Family Foundation Provides the latest state - level data on demographics, health and health policy, including health coverage, access, financing and state legislation and budgets. Health expenditures by state of residence Health expenditures by state of provider Prescription drugs Employer - based health premiums Hospital inpatient day expenses Tobacco settlement funds Mental health agency expenditures Correctional health care expenditure State budgets Health status BD Sommers. (2005). The Impact of Program Structure on Children222s Disenrollment from Medicaid and SCHIP. Health Affairs , 24(6): 1611- 1618. The Youth Risk Behavior CDC Monitors priority health - risk behaviors and the prevalence of obesity and asthma among youth and Unint entional injuries and JS. Santelli, J Abma, S Ventura, L Lindberg, B Morrow, JE F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 31 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Surveillance System (YRBSS) young adults. The YRBSS includes a national school - based survey conducted by the Centers for Disease Control and Prevention (CDC) and state, territorial, tribal, and local surveys conducted by state, territorial, and local education and health agencies and tribal governments. The YRBSS is a nationally representative sample of public and private high school students and includes representative samples of students in: Middle schools; Alternative schools; Juvenile justice facilities violence Tobacco use Alcohol and oth er drug use Sexual behaviors Unhealthy dietary behaviors Physical inactivity Anderson, S Lyss, BE Hamilton. (2004) . Can changes in sexual behaviors among high school students explain the decline in teen pregnancy rates in the 1990s? Journal of Adolescent Health, 35(2):80 - 90. DK Eaton, L Kann, S Kinchen, S Shanklin, J Ross, J Hawkins, WA Harris, R Lowry, T McManus, D Chyen, C Lim, ND Brener, H Wechsler. (2008) . Youth Risk Behavior Surveillance, Unite d States 227 2007. Morbidity and Mortality Weekly: 57(SS - 4) June 6. Treatment Episode Data Set (TEDS) SAMHSA An administrative data system providing descriptive information about the national flow of admissions and discharges to and from specialty providers of substance abuse treatment. Approximately 1.6 million admission records are submitted to TEDS each year and TEDS public use files for 1992- 1999 are available for on - line analysis through the Substance Abuse and Mental Health Data Archive (SAMHDA) TEDS Collects data from all 50 States, the District of Columbia, and Puerto Rico TEDS Discharge Data Set Type of service at discharge Date of last contact Date of discharge Reason for discharge, trans fer, or discontinuance of treatment TEDS Admissions: Minimum Data Set Client/codependent Transaction type (admission or transfer) RA Rawson, J Maxwell, B Rutkowski. (2007) . OxyContin Abuse: Who Are the Users? Am J Psychiatry, 164: 1634- 1636 R Callaghan, L Taylor, J Tavares. (2006) Addressing the needs of injection drug users in detoxification treatment. Journal of Substance Abuse Treatment , 30(2):165- 166. F I N A N C I N G CENTER O F EXCELLENCE rev. March 1 6 , 2010 32 SAMHSA Financing COE 226 Inventory of Datasets Dataset Collected By Description, Sample Coverage, and Dataset Characteristics Key Variables Indicative Studies /Presentations if Applicable Date of admission Type of service at admission Age Sex Race Ethnicity Number of prior treatment episodes Principal source of referral Education Employment status Substance problem [(primary, secondary, and tertiary) Usual route of administration Frequency of use Age at first use Use of methadone planned as part of treatment TEDS Admissions: Supplemental Data Set Pregnan cy st atus at time of admission Veteran status Psychiatric problem in
