Disorders
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Our Mission
To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the cure.
Our Vision
A world without the devastating effects of syringomyelia, Chiari malformations and related disorders
In The News
Pregnancy
new video from 2012 conference is now available. During the conference Dr Roger Kula of the Chiari Institute spoke about pregnancy in women who have been diagnosed with Chiari and/or syringomyelia. Go to ‘online videos’ to view this latest addition More »
maria’s fundraiser
Helping to make a difference in the lives of those affected by Chiari and syringomyelia, Maria held a fundraiser September 28th at the Acme in Doylestown, Pa. She raised over $450 for research! More »
2013 Chiari & Syringomyelia Conference
Save the Date! July 24 – 27, 2013 Los Angeles California Co-host Ulrich Batzdorf, MD and Langston Holly, MD More »
Give Comfort, Improve a Life
Shop from your seat, not on your feet. ASAP is pleased to announce a new Holiday Season Event. Give comfort to someone’s life with a set of high quality microfiber sheets equivalent to 1500 thread count. We have partnered with Amadora to be able to offer you fine quality bedding, at fantastic [...] More »
2012 Volunteer Awards
Volunteers for the year 2011-2012 were announced during the ASAP conference. Watch for the summer edition of ASAP Connections coming soon for the complete list. More »