Welcome to the National Ataxia Foundation

 

2012 Ataxia Research Drive

&

$150,000 Matching Research Grant Challenge!

A total of 53 quality ataxia research applications, represented by scientists from the United States, Italy, Germany, Portugal, UK, Australia, Belgium, Spain, and the Netherlands, are currently being reviewed. With your help, the most promising of these studies will be funded in late December for FY 2013.

These studies include many of the SCAs, Friedreich’s ataxia, Sporadic ataxia, Episodic ataxia, Recessive ataxias, new gene discoveries, and others. Promising studies which need our support.

The National Ataxia Foundation is pleased to announce that the Gordon and Marilyn Macklin Foundation is again offering a matching research gift for this year’s annual ataxia research drive. More….

 

Recognitions of

International Ataxia Awareness Day

The National Ataxia Foundation (NAF) greatly appreciates the NAF Ataxia Support Groups and members across the country hosting various events from early September to early October in recognition of International Ataxia Awareness Day (IAAD). Thousands of supporters are participating in Walk n’ Rolls, BINGO, Tea Gatherings, a Pull-Up Competition, and Zumba for Ataxia events that are being held throughout the United States, Canada, and India and tens of thousands are being better informed about ataxia through electronic, print, radio, and TV media. Thank you to the organizers and participants of these events.

 

“I Am The Strength Behind Ataxia”© Awards

The National Ataxia Foundation will be honoring outstanding ataxia community members at the 2013 Annual Membership Meeting (AMM). Do you know someone who has made a difference in the ataxia community? Tell us about them so we can shine a spotlight on those who give back to the ataxia community every day.

 

NEW EXERCISE FACT SHEET AVAILABLE

Until 2009, no physiotherapy concept had been evaluated for ataxia. Doris Brötz, a Physiotherapist in Tuebingen, Germany in cooperation with Prof. Ludger Schöls at the University of Tuebingen and Dr. Matthis Synofzik, MA Centre for Neurology developed the therapeutic exercises shown on NAF’s newest fact sheet. The exercises emerged from the focus of her work, which is the treatment of patients with neurological disorders and spinal disease. To download a copy of the fact sheet use this link or you may send a request for a hard copy to naf@ataxia.org.

 

Research Studies Currently Underway

The National Ataxia Foundation (NAF) is pleased to announce that 19 promising ataxia research studies and projects from the United States, Italy, Australia, and Germany were awarded funding at the December 2011 NAF Board of Directors meeting for fiscal year 2012. More...