|
|
|
| Latest News |
| October 3, 2012 |
Families of Spinal Muscular Atrophy Receives Funding from The Charles Rosenbaum Foundation for EasyS Medical Strollers for the FSMA Equipment Pool.
|
|
|
| October 2, 2012 |
Families of SMA Releases Family Support and Patient Services Guide as the Latest Spinal Muscular Atrophy Care Series Booklet.
|
|
|
| September 28, 2012 |
The Spinal Muscular Atrophy Community Grieves the Loss of Families of SMA Board Member and Community Leader Amy Marquez. | Everyone at Families of SMA sends our condolences to the family of Amy Marquez. |
|
|
|
| September 26, 2012 |
Repligen Initiates Phase 1b Trial of RG3039 for Spinal Muscular Atrophy Licensed from Families of SMA. | The primary objectives of the study are to further evaluate the safety and plasma pharmacokinetics (PK) of multiple doses of RG3039 in healthy volunteers. Repligen licensed RG3039 in 2009 from Families of Spinal Muscular Atrophy (FSMA). |
|
|
|
| September 25, 2012 |
Families of Spinal Muscular Atrophy Receives Generous Funding from John and Lacey Beeson to fund Z-Flo Positioners for the SMA Care Package Program. | Families of SMA is incredibly grateful to receive generous funding from John and Lacey Beeson for the Newly Diagnosed SMA Care Package Program to fund Z-Flo™ Fluidized Positioners to include in every Type I Care Package, in memory of their son, Hayden Riley Beeson. |
|
|
|
| September 24, 2012 |
10th Annual Northern California Walk-n-Roll For Families of SMA Raises Record Total in Milestone Year. | The 10th Annual Northern California Walk-n-Roll, held August 25 at Golden Gate Park in San Francisco, CA, was a tremendous success! |
|
|
|
| September 21, 2012 |
Registration for the 2013 Annual SMA Conference, held in Anaheim, California June 13th – June 16th, at The Disneyland Hotel, is now available. | We are now offering the Head Start Early Registration Fee which will be valid through December 1st, 2012, at 11:59pm Central Standard Time, when registration prices will increase. |
|
|
|
| September 20, 2012 |
Funding Received from Sweet Baby Zane and Hillary & Keith Schmid Has Reached Amazing Levels Enabling More SMA Families to Receive Necessary Equipment. | Families of SMA is thrilled to receive additional generous funding from Keith & Hillary Schmid and Sweet Baby Zane to purchase necessary medical equipment for SMA families through the FSMA Equipment Pool. |
|
|
|
|
|
|
|
|
|
|
