LATEST NEWS

See the new additions to our Doctor Database!


Check out these great sample letters from Genetic Alliance

to send to your child's teacher(s), and school nurse.

SDSF is a member of Genetic Alliance which does wonderful

work on behalf of genetic diseases





SDS Newsletter

Click here to download our latest newsletter.

Summer newsletter partial pic

 

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Real Family Stories
Research In Action

CURE FOR A FUTURE

Shwachman-Diamond Syndrome Foundation is a national, nonprofit, patient advocacy organization. Our goals are to advocate and support research towards a cure and to improve medical management of symptoms, as well as to link families for emotional support and supply them with the most current medical information available. This information is provided with the expertise and cooperation of our professional medical advisory board comprised of doctors and scientists from around the world.

Let’s help create a positive, healthy future for all in our SDS community!!
Please consider fundraising or donating to help! There is a DONATE button at the top of this page

Ask your friends and families to help this community. People love helping their friends, families and co-workers. You will be amazed! Whether you create a letter writing campaign or a planned event, you can help SDSF and its community of patients and families live better lives. Hopefully the funds that are raised can one day help find a cure.