Hunter's Hope Foundation [A Leukodystrophy Resource]

Hunter's Hope Foundation [A Leukodystrophy Resource]
P.O. Box 643
Orchard Park,  NY  14127
Tel: 716-667-1200 877-984-HOPE (-4673)
Fax: 716-667-1212
Email: info@huntershope.org
http://www.huntershope.org

Description: Fosters awareness about Krabbe disease and other leukodystrophies, works to promote early detection through newborn screening, provides information and service linkages to families, and funds research efforts to identify new treatments and therapies, and ultimately, a cure.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.