National Urea Cycle Disorders Foundation
Mission Statement
The goals of our organization are to provide guidance and information to families and others affected by urea cycle disorders, to educate medical personnel on the diagnosis and treatment of urea cycle disorders, to support and stimulate research which leads to improved treatment for today and A CURE for tomorrow, to network families together for support, to increase public awareness on the existence of UCDs to facilitate early diagnosis and lower mortality rates and to educate legislators on the needs of families affected by these rare disorders.
Contact Information
National Urea Cycle Disorders Foundation
Toll-free Phone: (800) 386-8233 En/
Website: http://www.nucdf.org/
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