Eye Health Organizations Database

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American College of Medical Genetics (ACMG)
7220 Wisconsin Avenue, Suite 300
Bethesda, MD 20814
301-718-9603
http://www.acmg.net
• Represents the medical genetics profession dedicated to making genetic services available to and improve the health of the public. Promotes the development and implementation of methods to diagnose, treat and prevent genetic diseases. Offers a “Find a Geneticist” service.

Foundation Fighting Blindness
7168 Columbia Gateway Drive, Suite: 100
Columbia, MD 21046
1-800-683-5555
1-800-683-5551 (TDD)
(410) 423-0600
(410) 872-0639 (TDD)
info@fightblindness.org
http://www.fightblindness.org
• The urgent mission of The Foundation Fighting Blindness is to drive the research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. For a $25.00 annual membership fee, FFB offers information and referral services for affected individuals and their families as well as for doctors and eye care professionals. The Foundation also , provides comprehensive information kits on retinitis pigmentosa, macular degeneration, and Usher syndrome. Their newsletter, InFocus, and their e-newsletter, InFocus online. present articles on coping, research updates, and Foundation news. InFocus is published 3 times per year; InFocus online is sent approximately 3 times per year. Their national conference is usually held every year.

National Eye Institute (NEI)
National Institutes of Health
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
(301) 496-5248
http://www.nei.nih.gov
• Conducts and supports research on eye diseases and vision disorders. Offers free publications for the general public and patients.

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
1-800-999-6673
(203) 744-0100
(203) 797-9590 (TDD)
http://www.rarediseases.org
• Acts as a clearinghouse for information about rare disorders. Fosters networks between families with similar disorders. Educates the general public and medical profession about the existence, diagnosis, and treatment of rare disorders.

National Society of Genetic Counselors (NSGC)
401 N. Michigan Avenue
Chicago, IL 60611
(312) 321-6834
nsgc@nsgc.org
http://www.nsgc.org/
• Represents the genetic counseling profession. Provides information and support to families who have members with birth defects or genetic disorders and to families who may be at risk for a variety of inherited conditions. Offers a “Find a Counselor” service.