Newborn Screening Saves Lives Act

Newborn Screening Saves Lives Act

[H.R. 3825, S. 1858]

What is the Newborn Screening Saves Lives Act?

The Newborn Screening Saves Lives Act (H.R. 3825, S. 1858) is a compromise bill between the Newborn Screening Saves Lives Act (H.R. 1634, S. 634) and the Screening for Health of Infants and Newborns Act (H.R. 2889, S. 1712). This legislation establishes grant programs, which are to be awarded to eligible entities to provide education in congenital, genetic, and metabolic disorders; and training in newborn screening technologies. Grant programs are also to be used to coordinate follow-up care. In addition to grant programs, this bill increases consumer awareness and knowledge of family support services, research, and other resources in newborn screening; improves laboratory quality standards; develops a national contingency plan if a public health situation arises; and establishes a central online clearinghouse. Finally, the bill renews the Secretary’s Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children, and expands and coordinates research, particularly on conditions that could be added to the panel in the future.

What is the status of the bill?

  • House cosponsors
  • Senate cosponsors
  • April 24, 2008 – The Newborn Screening Saves Lives Act is signed into law by the President.
  • April 8, 2008 – The Newborn Screening Saves Lives Act is passed by the House of Representatives.
  • December 13, 2007 – The Newborn Screening Saves Lives Act is passed by the Senate.
  • November 14, 2007 – The Newborn Screening Saves Lives Act is approved by the Senate
      Health Education, Labor, and Pensions Committee.
  • October 15, 2007 – The Newborn Screening Saves Lives Act is introduced in the House.
  • July 23, 2007 – The Newborn Screening Saves Lives Act is introduced in the Senate.
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