For Families
Frequently Asked Questions about newborn bloodspot screening
Find out the answers to the following questions and more. Why does my baby need Newborn Screening tests? How will my baby be tested? How will I get the results of the test?
Conditions Screened by US Programs
Chart listing disorders tested by state.
State Newborn Screening Program Contacts
PDF file containing contact information for the laboratory and follow-up coordinators in each state's and territory's newborn screening program.
Hearing Screening
Hearing screening resources, state screening programs, legislation, organizations, and parent education links.
Disorder Fact Sheets
Disorder Fact Sheets for parents provided by the Screening, Technology And Research in Genetics (STAR-G) Project.
Additional Testing
List of companies which charge a fee for additional screening that may not be offered in your state.
Genetics Information
Links to genetics counseling, family forums, and fact sheets on genetics.