News & Events
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RFP for The Bachmann-Strauss Dystonia and Parkinson's Disease Center of Excellence
CLICK HERE to view RFP.
Help our Marathon Team Reach Their Fundraising Goal before the ING NYC Marathon.
CLICK HERE to help support and learn more about TEAM Bachmann-Strauss.
Jake's Ride for Dystonia Research 2012 Raises More Money Than Ever!
CLICK HERE for more information on Jake's Ride.
The 20th Annual Golf Invitational raised over $1.9 million for dystonia and Parkinson's medical research!
CLICK HERE to view photos from the event.
Cars for Dystonia & Parkinson's Raises over $8,000 for Medical Research!
CLICK HERE to view the photos from the event.
Thank You to Everyone who Attended the Matthew Williamson Event on March 22nd. Such a Great Shopping Experience that Raised Needed Funds for Research!
Bachmann-Strauss in the Press!
Click here to check out a featured story on Bachmann-Strauss in New York Social Diary.
Support Jared's Art and Purchase a Custom Painting for Dystonia Research!
Click here to visit Jared's site.
BREAKING NEWS!
Exciting NEW Medical Discovery for Parkinson's Disease that our Foundation Funded Thanks to Your Support!
Click here to read the full medical article.
Welcome
Welcome!
About Us
The Bachmann-Strauss Dystonia & Parkinson Foundation (BSDPF) was founded in 1995 as a nonprofit 501(c)3 by Louis Bachmann(1916-2000) and Bonnie Strauss. The Foundation was started to encourage new research and scientists in the fields of dystonia and Parkinson disease, and to heighten awareness about the diseases. (Read More)
Breaking News: One of our Research Grantee's Work is Published!
The Zebrafish Homologue of the Human DYT1 Dystonia Gene Is Widely Expressed in CNS Neurons but Non-Essential for Early Motor System Development
CLICK HERE to read his published work.
Summer 2012 Outlook Newsletter
This issue of our Newsletter includes stories on:
- Educating and Empowering Patients
- 10th Annual Think Tank
- Transforming the Scientific Landscape with New Research
- Seeking Better Dystonia Screening Drugs
- Congress to Fund Research
- Jake's Ride Hits $1 Million!
- Internationally Renowned Fashion Designer Hosts Bachmann-Strauss Gathering
- A Quintessential Volunteer
CLICK HERE to view our current OUTLOOK Newsletter.
Check out Dystonia Support Groups at Beth Israel Medical Center
Adult Dystonia Support Group
Please join us at our next meeting on
Monday, October 22, 2012
Open Discussion: Living with Dystonia
6:00-8:00pm
Beth Israel Medical Center
Phillips Ambulatory Care Center
10 Union Square East, New York, NY
5th Floor Conference Room (Room # 5K04)
Please RSVP to 212-844-6134 or BIMCMovDis@chpnet.com
Patient moderator: Pam Sloate, pamsloate@yahoo.com
Please join us! Light refreshments will be provided.
We look forward to seeing you!
Dystonia in the Press!
The Patch - Jake's Ride Raises $300,000
http://southorange.patch.com/articles/jake-s-ride-raises-300-000#photo-11570311
The Alternative Press - Riding for Hope: 5th Annual Jake's Ride for Dystonia Research Held in Millburn
http://thealternativepress.com/articles/riding-for-hope-5th-annual-jakes-ride-for-dyst
Huffington Post - Dystonia Call for Action Day, To Highlight Disorder, Set for June 18th
http://www.huffingtonpost.com/2012/06/14/dystonia-call-for-action-_n_1596910.html
NY1:
New York Social Diary:
http://www.newyorksocialdiary.com/node/1908132
Researchers Need You!
Researchers at Mount Sinai School of Medicine are looking for patients with either Primary Focal Dystonias, Spasmodic Dysphonia, and Essential Tremor of Voice Spasmodic Dysphonia to participate in their scientific study on these disorders. Click on the flyers below to find out more info.
Essential Tremor of Voice Spasmodic Dysphonia
Academy Award Nominee and this year's Oscars co-host, Anne Hathaway supports The Bachmann-Strauss Foundation
Actress Anne Hathaway, hosted a private dinner and screening of her latest film "Love & Other Drugs" to help us raise awareness and find a cure of dystonia and Parkinon's disease.
Click here to read about this special event.
Click here to view photos of Anne.
Click here to check out press articles about the event.
CHECK OUT THE NEW BACHMANN-STRAUSS SHUTTERFLY PHOTO SITE!
You can view all of our photos, share them with friends and family and even save them for your own personal use!
Click here to view our photo site!
The Foundation is a proud member of the Dystonia Coalition.
The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups that is working to advance the pace of clinical and translational research in the dystonias to find better treatments and a cure.
Find out more about the Coalition
For the official Dystonia Coalition website, click here