Affordable Care Act

On June 28th, the Supreme Court upheld President Obama's Affordable Care Act. Our government counterpart in Washington D.C. has provided some documents on what this ruling means to PKD patients and their families. We will have more information as it becomes available.

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Walk for PKD 2012

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Workplace Giving

Learn how you can help us in the fight against PKD by making a gift through your employer.

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Lillian Jean Kaplan PKD Prize

The 2013 Lillian Jean Kaplan International PKD Prize will be presented to each winner in person at the World Congress of Nephrology 2013 in Hong Kong in June, 2013. The deadline for nominations is December 1, 2012.

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UNOS Issues Proposal to Amend Deceased Donor Kidney Allocation Policy

October 2, 2012

The United Network for Organ Sharing (UNOS) has issued a proposal to amend the deceased donor kidney allocation policy. The long-awaited proposed policy changes would maintain access to kidney transplantation for all candidates while seeking to improve outcomes for kidney transplant recipients and increase utilization of available kidneys. To read a summary of the key points of the new allocation policy, click here. To read the full proposal, click here or for frequently asked questions, click here.

To submit a comment about the proposal, click here to visit the Public Comment section of the OPTN website and click on policy #1. The deadline for public comment is December 14, 2012.

More information about this proposal will be posted as it becomes available.

PKD Foundation in the Spotlight