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Since 1987, The Sturge-Weber Foundation has been providing superior support and learning opportunities to all individuals and healthcare providers impacted by a port wine birthmark and related conditions such as Sturge-Weber syndrome and Klippel-Trenaunay. The 10 Sturge-Weber syndrome Centers of Excellence around the country provide clinical care and research into new treatments while we search for the cause and cure.
We're a phone call away, 800-627-5482!
For those of you just beginning your search for answers - In the midst of all the challenges, there are many individuals and families who have experienced successes and shining moments. Read about the good things that have happened and continue to happen in the lives of our members. We invite you to join us.
- Not registered? We invite you to join.
- Not sure? Maybe it was a long time ago that you first found us. Re-connect now.
- Registered members have many benefits, including newsletters, contact information for doctors and families, and invitations to conferences, education days and family events. We welcome all individuals and families who have SWS/PWB or KT or have a concern for someone who has these syndromes.
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The Faces of Miracles campaign was launched in 2009 as a way of heightening awareness for Sturge-Weber syndrome, Port Wine birthmark and related conditions. The campaign’s funding has provided vital support to carry our mission forward. Faces of Miracles reminds us there are people who need our love and support every day and who deserve a Champion along the way!
As we enter our 25th year it is a good time to reflect on special memories and special friends. The Sturge-Weber Foundation story began with one woman’s spark which ignited others to carry the torch; establishing a supportive network, facilitating vital research and creating hope for thousands around the world. The Faces of Miracles Anniversary book will include Foundation history, accomplishments and program information along with personal stories and memories from Foundation staff and YOU, our cherished members.
We are asking for your help to capture all the memories that have made the Foundation a global resource and respected partner. Please share your story in the Anniversary book through one or more of the participation opportunities below:
Stories/Photo
- Stories and pictures featured in the book will be of an individual with a Port Wine birthmark condition
- Photos should be high resolution, jpeg photos
- Stories should be no more than 580 words but of course, do not need to be this long.
Memoirs:
Click here and tell us how The Sturge-Weber Foundation has been a part of your life with 6 words.
Foundation Tributes
Tell us what the Foundation means to you and how it has helped you through your journey. Include your name and a picture.
Pictures
- Events – Did you hold an event, attend an event, educational forum or family day? Please share your pictures and include a caption!
- Favorite photo – Do you have a favorite photo? Submit a photo (must include the individual with SWS, KT or PWB but can be entire family/friends, etc.) along with names and date
Items must be submitted to Bonnie at
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by Friday, August 2, 2013. Of course we would love to have them sooner! Thanks for your help in advance! Books will be available in November 2013. What a great way to raise awareness – the stronger the wind, the tougher the trees…
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