Brussels policy debate to improve rare disease medicine access
Annual international awareness-raising campaign on rare diseases
7° MEETING F.O.P. (Fibrodysplasia Ossificans Progressiva): 22 -23 March 2013, Parma, Italy.
Check out the latest news and events from our members.
Slovakia and Russia held EUROPLAN conferences on the occasion of Rare Disease Day. Read more about EUROPLAN 2012-2015.
Towards comprehensive National Plans and Strategies for Rare Diseases across Europe.
EURORDIS Fact Sheets for patient advocates have been updated.
Find Respite Care Services here.
RareConnect
A social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups.
 |
My name is Larry I am 47, and I have Erdheim-Chester Disease. |
 |
List of Rare Disease Communities:
To find out more about how you can join RareConnect, contact us.
Featured Patient Organisation
Featured Event
Members' Corner
National Plans
Actions
International Events
EURORDIS TV
Watch EURORDIS' TV's video of the week!
Emma's story of hope as she lives with Gaucher disease in Canada.
Social Networks
 |
 |
 |
 |
We comply with the HONcode standard for health trustworthy information
We are grateful for the financial support of the EURORDIS website by :
