Ethical, Legal and Social Implications Program Reports

• Genetic Testing
• Genetic Discrimination and Health Insurance
• Issues Related to the Conduct of Genetic Research
• Underrepresented Minorities
• Specific Research Topics
• Program Reviews

Genetic Testing

• Follow-up Workshop to the Consensus Development Conference on Genetic Testing for CF (10/97)
• Promoting Safe and Effective Genetic Testing in the United States: Final Report of the Task Force on Genetic Testing (9/97)
• Genetic Testing for Cystic Fibrosis Consensus Development Conference Statement [consensus.nih.gov] (4/97)
• NIH Workshop Statement - Reproductive Genetic Testing: Impact on Women (11/91)
• NIH Workshop Statement - Population Screening for the CF Gene (7/90)

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Genetic Discrimination and Health Insurance

• Genetic Information and the Workplace (1/98)
• NIH-DOE ELSI Working Group and National Action Plan on Breast Cancer Workshop on Genetic Discrimination and the Workplace (10/96)
• NIH-DOE ELSI Working Group and National Action Plan on Breast Cancer Workshop on Genetic Discrimination and Health Insurance (7/95)
• Insurance Task Force Report--Executive Summary (5/93)
• Genetic Information and Health Insurance - Report of the Task Force on Genetic Information and Insurance (5/93)

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Issues Related to the Conduct of Genetic Research

• Report of the First Community Consultation on the Responsible Collection and Use of Samples for Genetic Research [nigms.nih.gov] (9/00)
• NCHGR/CDC Workshop on Informed Consent for Genetics Research Using Stored Tissue Samples(7/94)
• Protecting Human Research Subjects: 1993 OPRR IRB Guidebook Chapter on Human Genetic Research

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Underrepresented Minorities

• Summary of Grantees' Workshop on Strategies for Increasing the Number of Underrepresented Minorities Participating in Genomics and ELSI Research (11/01)
• Plan for Increasing the Number of Underrepresented Minorities Trained in Genomics and ELSI Research (2001)

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Specific Research Topics

• Studying interactions Among Social, Behavioral & Genetic Factors in Health (10/01)
• Cancer Genetic Studies Consortium (1998)
• Hereditary Hemochromatosis: Gene Discovery and Policy Meeting (3/97)

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Program Reviews

• The Role of ELSI Research & Policy Activities in the NHGRI Plan (10/02)
• A Review and Analysis of the ELSI Research Programs at NIH and DOE (ERPEG Final Report) (2/00)
• Report of the Joint NIH/DOE Committee to Evaluate the Ethical, Legal and Social Implications Program of the Human Genome Project (12/96)
• Review of the ELSI Program: 1990-1995 (3/96)

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Last Reviewed: May 25, 2012