ELSI Research Program Abstracts and Activities Database

Ethical, Legal and Social Implications (ELSI) Research Program Abstracts and Activities Database

ELSI Research Program ELSI Planning and Evaluation History ELSI Abstracts and Activities Database ELSI Grant Publications & Products ELSI Program Reports

The Ethical, Legal and Social Implications (ELSI) Research Program funds and manages projects that conduct research and education on ELSI issues. ELSI also supports other program activities such as workshops, research consortia and policy conferences related to these issues.

What's Included in the Database

The ELSI Research Program Abstracts and Activities Database organizes the abstracts for all ELSI projects and activities by the last name of the principle investigator (PI). Each entry also includes, and can be searched by using:

• A specific topic - or search term - related to an ELSI issue, (i.e., discrimination, genetic testing or privacy)
• The type of grant (i.e., education, research or conference).
• The grant number.
• The name of the principal investigator.
• The name of the institution where the research was conducted.
• The actual grant period or a year contained within the grant period.

Note: To see ALL abstracts and activities, click on the Search button below without typing anything into the search fields.

Publications or products - the specific research results - will automatically be included following related grant abstracts or activity entries.

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Type of Grant or Activity:	--- None Selected --- Research Education Conference Fellowship Training Career Development Research Center Research Resource Contract Interagency Agreement DIR Protocol Research Consortium Other Program Activity
Grant Number: (e.g; "R25 TW007091")	Activity Code D43 F31 F32 F33 K01 K99 N01 P20 P30 P41 P50 PN1 R01 R03 R13 R21 R25 R29 R43 R44 R55 RC1 S07 T15 T36 U01 Y01 Y02 Institute Code AG AI CA DA DC DK ES GM HD HG LM MH NR NS OD RR TW Serial Number
Principal Investigator:	--- None Selected --- ADEBAMOWO, Clement AMUNDSON, Ronald ANDERSON, Gwen ANDREWS, Lori APPLEBAUM, Paul ARAR, Nedal ARMSTRONG, Katrina ARNOLD, Lauren D. ARNOS, Kathleen ARONOWITZ, Robert ARONSON, Jay David ASCH, David BAILEY, Donald BAKER, Diane BARATA, Llilda BASSETT, Susan BERNHARDT, Barbara A. BESKOW, Laura Mari BESS, Michael BIESECKER, Barbara Bowles BLACKER, Deborah BLOSS, Cinnamon S BLUMENTHAL, David BOTKIN, Jeffrey BOURI, Khaled BOWEN, Deborah BOYER, Bert Brandon BOYLE, Philip BRANDT-RAUF, Paul BROWN, R. Steven BROWNER, Carole BUCHANAN, Allan BULGER, Ruth BURHANSSTIPANOV, Linda BURKE, Wylie BURNS, Joan CABURNAY, Charlene CALLAHAN, Daniel CAMPBELL, Eric CAPLAN, Arthur CAPPELLA, Joseph N. CAPRON, Alexander Morgan CARROLL, Ann CASH, Richard CASKEY, C. Thomas CASSIDY, Suzanne CHANDRASEKHARAN, Subhashini CHEDD, Graham CHO, Mildred CHUNG, Wendy CHURCHILL, Larry CHUTE, Christopher CITRIN, Toby CLAYTON, Ellen Wright CLAYTON, Jay CODORI, Anne-Marie COLE, Simon CONDIT, Celeste CONRAD, Peter COOK, Ann COOK DEEGAN, Robert CORBIE-SMITH, Giselle COWAN, Ruth CULTER, Leona DALY, Mary DAVID, Sean DAVIS, Dena DAVIS, John DESNICK, Robert DORSCHER, Joycelyn DOUGHERTY, Michael DRESSER, Rebecca DRESSLER, Lynn DUSTER, Troy ELGIN, Sarah ELIAS, Sherman ELLINGTON, Lee ELLIOT, Bruce Jr. EMANUEL, Beverly ETZEL, Ruth EUNPU, Deborah FADEN, Ruth FADER, Betsy FANOS, Joanna FARRELL, Philip FEALK, Elizabeth FINE, Beth FLETCHER, John FLICK, Bonnie FOSTER, Morris FREUND, Carol FUJIMURA, Joan FULLERTON, Stephanie GALLO, Agatha GARBER, Judy GARRETT, Jeremy Ray GARRISON, Nanibaa'a GARTE, Seymour GELERNTER, Joel GELLER, Gail GERT, Bernard GESTELAND, Raymond GILL, Carol GILLIAM, T. Conrad GLANZ, Karen GOLDENBERG, Aaron J. GOLDSTEIN, Doris GOLUB, Sidney GORDON, Deborah GOSTIN, Lawrence GRABER, Glenn GRAMLING, Robert E. GRANDE, David T. GREEN, Michael GREEN, Robert GREEN, Ronald GREGG, Robin GRIBBLE, James GRITZ, Ellen GRODY, Wayne HADDOW, Paula HADLEY, Don HAGA, Susanne B. HALL, Mark HAMILTON, Rebekah HAMMOND, Keith HEATH, Deborah HENDERSON, Gail HILGARTNER, Stephen HOFFMAN, Diane E. HOFFMAN, Lance HOLM, Ingrid HOLMES, Helen HOLTZMAN, Neil HOLUP, Joan HONDA, Sandra HUDSON, Kathy HUGHES-HALBERT, Chanita HUNT, Linda IONNO, Sandra JABS, Ethylin JAVITT, Gail JAYARATNE, Toby JOFFE, Steven JOHNSON, Alissa L. JONSEN, Albert JUENGST, Eric KAHN, Jeffrey KAHN, Jonathan KARDIA, Sharon KARJALA, Dennis KAUFMAN, David J. KAY, Lily KELEHER, Cynthia KELLY, Susan KENNER, Carole KEVLES, Daniel KILBERG, Richard KING, Mary Claire KINNEY, Anita KLITZMAN, Robert KNOPPERS, Bartha KOENIG, Barbara KRANTZ, Ian KUPPERMANN, Miriam LADEN, Vicki LAPHAM, E. Virginia LEA, Dale LEE, Sandra LERMAN, Caryn LESTER, Helen LEWIS, Michelle Huckaby LICINIO, Julio LIPKUS, Isaac LOUE, Sana MACKLIN, Ruth MAGYARI, Trish MAHOWALD, Mary MALEY, Julie MALIN, Bradley A. MALVERN, Kathryn MARCHANT, Gary MARENCO, Marc MARKEL, Howard MARKOWITZ, Dina MARSHALL, Patricia MATTHEWS, Deborah MCCABE, Edward MCCAULEY, Linda MCGOVERN, Margaret MCGUIRE, Amy MCGUIRE, Amy Lynn MCINERNEY, Joseph MEHLMAN, Maxwell MEISLER, Miriam MERZ, Jon MICHIE, Marsha Mabry MICKLOS, David MIESFELDT, Susan MILES, Steven MILLER, Suzanne MOSELEY, Ray MOULTON, Benjamin MOUNTCASTLE-SHAH, Elizabeth MURRAY, Jeff MURRAY, Thomas MYERS, Richard NATION, Maury NELKIN, Dorothy NIMGAONKAR, Vishwajit NOBLE, Alice OSSORIO, Pilar PAGE, David PAGON, Roberta PALMER, Christina PARAD, Richard PARDEY, Philip PARENS, Erik PATENAUDE, Andrea PAUL, Diane PAULSEN, Jane PESHKIN, Beth PETERS, Theodore PETERSEN, Gloria PETERSON, Susan K. PHELAN, Jo PHILLIPS, John PLON, Sharon E. POST, Stephen POWERS, Joshua PRESS, Nancy PROCTOR, Robert PROWS, Cynthia PYERITZ, Reed E. RAMSEY, Scott RAU, Richard REIFF, Marian F. ROBERTS, Laura ROBERTSON, John ROMERO, Francine ROSAMOND, Rhodes ROTER, Deborah ROTHMAN, David ROTHMAN, Sheila ROTHSCHILD, Joan ROTHSTEIN, Mark ROTIMI, Charles ROWLEY, Peter ROYAL, Charmaine RUBIN, Lisa Robyn SAGOFF, Mark SAMUELS, Sheldon SANKAR, Pamela SARKAR, Sahotra SAXTON, Marsha SCANLON, M. Colleen SCHERR, Albert SCHNEIDER, William SCHULL, Diantha SCHWARTZ, Marc D. SCOTT, Bari SEGAL, Mary SEINER, Laura SHARP, Richard SHIELDS, Alexandra SHIH, Ya-Chen Tina SHIM, Janet K. SHORT, M. Priscilla SHOULSON, Ira SIDERS, Jane SIKELA, James SIMON, Christian Michael SINGER, Eleanor SINGER, Peter SKINNER, Debra SMITH, David SMITH, Edward SMITH, Maureen E. SO, Anthony SORENSON, James SORKIN, Donna SPICER, Paul STOCKDALE, Alan STONE, T. Howard STOWE, Matthew STRONG, Carson SUTTON, Karey TABOR, Holly K. TANNER, T. Bradley TAYLOR, Kathryn TEICH, Albert TERCYAK, Kenneth TEXTER, Cardie TOMLINSON, Tom TRIBBLE, Leta Meole TROTTIER, Ralph VADAPARAMPIL, Susan VASQUEZ, Arturo WACHBROIT, Robert WAGNER, Jennifer Kristin WAGNER, Sarah WAISBREN, Susan WALTERS, LeRoy WANG, Catharine WAPNER, Ronald WASSERMAN, David WATSON, Michael WEEKS, Daniel WEINBERG, Armin WEINFURT, Kevin P. WEITZEL, Jeffrey WERTZ, Dorothy WHITENER, Ron WIKLER, Daniel WILKES, Michael WILKINSON, Susann WILLIAMS, Janet WILSON, Donald WOLF, Susan YANDELL, David ZABORSKY, Oskar ZALLEN, Doris ZILINSKAS, Raymond
Research Institution:	--- None Selected --- Albert Einstein Healthcare Network, Philadelphia, Pennsylvania Albert Einstein Medical Center, Philadelphia, Pennsylvania American Association for the Advancement of Science, Washington, District of Columbia American College of Medical Genetics, Bethesda, Maryland American Medical Association, Chicago, Illinois American Nurses Association, Washington, District of Columbia American Society for Human Genetics, Bethesda, Maryland American Society of Law, Medicine & Ethics, Boston, Massachusetts Arizona State University, Tempe, Arizona Baylor College of Medicine, Houston, Texas Boston University Medical Campus, Boston, Massachusetts Bowman Gray School of Medicine, Winston Salem, North Carolina Brandeis University, Waltham, Massachusetts Brigham and Women's Hospital, Boston, Massachusetts California Institute of Technology, Pasadena, California California Pacific Medical Center, San Francisco, California Carnegie Mellon University, Pittsburg, Pennsylvania Case Western Reserve University, Cleveland, Ohio Chicago-Kent College of Law, Chicago, Illinois Children's Hospital Boston, Boston, Massachusetts Children's Hospital Medical Center (Cincinnati), Cincinnati, Ohio Children's Hospital Research Foundation, Cincinnati, Ohio Children's Hospital of Philadelphia, Philadelphia, Pennsylvania City of Hope National Medical Center, Duarte, California Cleveland Clinic Lerner College of Medicine of Case Western Reserve University, Ohio Cleveland State University, Cleveland, Ohio Clinical Tools, Inc., Chapel Hill, North Carolina Cold Spring Harbor Laboratory, Cold Spring Harbor, New York Columbia University, New York, New York Columbia University Health Sciences, New York, New York Cooper University Hospital, Camden, New Jersey Dana-Farber Cancer Institute, Boston, Massachusetts Dartmouth College, Hanover, New Hampshire Dibner Institute, Cambridge, Massachusetts Duke University, Durham, North Carolina Education Development Center, Inc., Newton, Massachusetts Eunice Kennedy Shriver Center, Waltham, Massachusetts Eunice Kennedy Shriver Center for Mental Retardation, Waltham, Massachusetts Federation of American Societies for Experimental Biology, Bethesda, Maryland Ferre Institute, Inc., Binghamton, New York Foundation for Blood Research, Scarborough, Maine Fox Chase Cancer Center, Philadelphia, Pennsylvania Franklin Pierce Law Center, Concord, New Hampshire Fred Friendly Seminars, Inc., New York, New York Fred Hutchinson Cancer Research Center, Seattle, Washington Gallaudet University, Washington, District of Columbia Genetic Alliance, Washington, District of Columbia George Mason University, Fairfax, Virginia George Washington University, Washington, District of Columbia Georgetown University, Washington, District of Columbia Goodman Research Group, Inc., Cambridge, Massachusetts Gordon Conwell Theological Seminary, South Hamilton, Massachusetts Graduate Theological Union, Berkeley, California Greenwood Genetic Center, Greenwood, South Carolina Harvard School of Public Health, Boston, Massachusetts Health Research, Inc., Buffalo, New York Howard University, Washington, District of Columbia Indiana State University, Terre Haute, Indiana Indiana University, Bloomington, Indiana Indiana University - Purdue University Indianapolis (IUPUI), Indianapolis, Indiana Johns Hopkins Medical Institutions, Baltimore, Maryland Johns Hopkins University, Baltimore, Maryland Johns Hopkins University School of Medicine, Baltimore, Maryland Kaiser Foundation Research Institute, Honolulu, Hawaii Lewis and Clark College, Portland, Oregon Libraries for the Future, New York, New York Loyola University Chicago, Maywood, Illinois MACRO International, Inc., Silver Spring, Maryland Massachusetts Corp. for Educational Telecommunications (MCET), Boston, Massachusetts Massachusetts General Hospital, Boston, Massachusetts Massachusetts General Hospital, Charlestown, Massachusetts Massachusetts Institute of Technology, Cambridge, Massachusetts Mayo Clinic College of Medicine, Rochester, New York Medical College of Wisconsin, Milwaukee, Wisconsin Medical Genetics Branch, NCHGR, Bethesda, Maryland Memorial Hospital of Rhode Island, Pawtucket, Rhode Island Michigan State University, East Lansing, Michigan Moffitt Cancer Center, Tampa, Florida Morehouse School of Medicine, Atlanta, Georgia Mount Sinai School of Medicine, New York, New York Mount Sinai School of Medicine of CUNY, New York, New York National Academy of Sciences, Washington, District of Columbia National Center for Human Genome Research and National Cancer Institute, NIH, Maryland National Coalition for Health Professional Education in Genetics, Lutherville, Maryland National Conference of State Legislatures, Denver, Colorado National Institute of Justice, Washington, District of Columbia National Research Council, Washington, District of Columbia National Society of Genetic Counselors (NSGC), Wallingford, Pennsylvania Native American Cancer Initiative, Inc., Pine, Colorado New York State Psychiatric Institute, New York, New York New York University, New York, New York Northwest Portland Area Indian Health Board, Portland, Oregon Northwestern University, Chicago, Illinois Oregon Health & Science University, Portland, Oregon Park Ridge Center for Health, Faith and Ethics, Park Ridge, Illinois Penn State Milton S. Hershey Medical Center, Hershey, Pennsylvania Penn State University, State College, Pennsylvania Pennsylvania State University- University Park, State College, Pennsylvania Primary Children's Medical Center, Salt Lake City, Utah Princess Margaret Hospital, Toronto, Ontario (Canada) Project on Women and Disability, Boston, Massachusetts Research Triangle Institute, Rockville, Maryland Scripps Health, La Jolla, CA Seattle Children's Hospital, Seattle, Washington Self Help for Hard of Hearing People, Bethesda, Maryland Self Reliance Foundation, Washington, District of Columbia SoundVision Productions, Berkeley, California Southcentral Foundation, Anchorage, Alaska Stanford Center for Biomedical Ethics, Palo Alto, California Stanford University, Palo Alto, California State University of New York, Stonybrook, New York Student Pugwash USA, Washington, District of Columbia The Children's Mercy Hospital, Kansas City, MO The Council of State Governments, Lexington, Kentucky The Hastings Center, Garrison, New York Tuskegee University, Tuskegee, Alabama University of Alaska Fairbanks, Fairbanks, AK University of California, Berkeley, Berkeley, California University of California, Davis, Davis, California University of California, Irvine, Irvine, California University of California, Los Angeles (UCLA), Los Angeles, California University of California, Los Angeles (UCLA)- David Geffen School of Medicine, California University of California, San Francisco, San Francisco, California University of Chicago, Chicago, Illinois University of Colorado Health Sciences Center, Denver, Colorado University of Colorado at Denver, Denver, Colorado University of Colorado at Denver and Health Sciences Center, Aurora, Colorado University of Florida, Gainesville, Florida University of Georgia, Athens, Georgia University of Hawaii, Honolulu, Hawaii University of Hawaii at Hilo, Hilo, Hawaii University of Houston, Houston, Texas University of Houston-University Park, Houston, Texas University of Ibadan, Ibadan, Nigeria University of Illinois at Chicago, Chicago, Illinois University of Iowa, Iowa City, Iowa University of Kansas, Lawrence, Lawrence, Kansas University of Louisville, Louisville, Kentucky University of Maryland, Baltimore, Maryland University of Maryland Baltimore Professional School, Baltimore, Maryland University of Maryland College Park, College Park, Maryland University of Massachusetts Boston, Boston, Massachusetts University of Massachusetts Lowell, Lowell, Massachusetts University of Massachusetts Medical School Worcester, Worcester, Massachusetts University of Medicine and Dentistry of New Jersey, Piscataway, New Jersey University of Michigan at Ann Arbor, Ann Arbor, Michigan University of Michigan- Institute for Research on Women and Gender, Ann Arbor, Michigan University of Minnesota Duluth, Duluth, Minnesota University of Minnesota Twin Cities, Minneapolis, Minnesota University of Montana, Missoula, Montana University of Montreal, Montreal, Quebec (Canada) University of North Carolina at Chapel Hill, Chapel Hill, North Carolina University of Oklahoma, Norman, Oklahoma University of Pennsylvania, Philadelphia, Pennsylvania University of Pennsylvania Center for Bioethics, Philadelphia, Pennsylvania University of Pennsylvania School of Medicine, Philadelphia, Pennsylvania University of Pittsburgh, Pittsburgh, Pennsylvania University of Rochester, Rochester, New York University of Southern California Law School, Los Angeles, California University of Southern Mississippi, Hattiesburg, Mississippi University of Tennessee, Knoxville, Tennessee University of Tennessee, Health Sciences Center, Memphis, Tennessee University of Texas Health Center at Tyler, Tyler, Texas University of Texas Health Sciences Center, Department of Cellular and Structural Biology University of Texas at Austin, Austin, Texas University of Texas- M. D. Anderson Cancer Center, Houston, Texas University of Toronto, Toronto, Ontario (Canada) University of Utah, Salt Lake City, Utah University of Vermont, Burlington, Vermont University of Virginia, Charlottesville, Virginia University of Virginia Health Sciences Center, Charlottesville, Virginia University of Washington, Seattle, Washington University of Washington School of Medicine, Seattle, Washington University of Washington, Department of Medical Education, Seattle, Washington University of Washington, Department of Medical History and Ethics, Seattle, Washington University of Washington, Division of General Internal Medicine, Seattle, Washington University of Wisconsin-Madison, Madison, Wisconsin Vanderbilt University, Nashville, Tennessee Vanderbilt University, Center for Genetics and Health Policy, Nashville, Tennessee Virginia Polytechnic Institute and State University, Blacksburg, Virginia WGBH Educational Foundation, Boston, Massachusetts WNET Thirteen, New York, New York Washington University, St. Louis, Missouri Whitehead Institute, Cambridge, Massachusetts Workplace Health Fund, Washington, District of Columbia Yale University, New Haven, Connecticutt Yeshiva University, New York, New York Zeta Phi Beta Sorority, Inc., National Educational Foundation, Moorestown, New Jersey Zeta Phi Beta Sorority, Inc., National Educational Foundation, District of Columbia
Grant Period Includes:	1981 1982 1983 1984 1985 1986 1987 1988 1989 1990 1991 1992 1993 1994 1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 2012
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Last Updated: March 15, 2013