Subscribe to HIV/AIDS email updates.
Caring for yourself and others with HIV/AIDS
- Symptoms of HIV/AIDS
- Treatment side effects
- Substance abuse
- General health
- More information on caring for yourself and others with HIV/AIDS
If you have HIV/AIDS or you're caring for someone who does, there are many things to think about. Below are some issues to consider.
Many people have no symptoms when they first get HIV — some even have no symptoms for years. Some people may get symptoms of acute retroviral syndrome. These are signs of HIV that appear after infection but eventually go away. These signs are similar to those of other illnesses, so they can be overlooked. Symptoms include:
- Swollen lymph nodes
- Swollen and sore throat
- Skin rash
- Muscle aches or pain
With a weakened immune system, people with HIV/AIDS can get opportunistic infections (OIs). These are infections that usually don't make a healthy person sick. When a woman's CD4 count drops below 200, or when an OI is present, her HIV infection has become advanced. At this point she has AIDS. Possible signs of AIDS are also listed below. There are many other symptoms for different OIs.
|Possible HIV symptoms||Possible AIDS symptoms|
There is no cure for HIV or AIDS, but treatment can slow down the disease. This way, it will take more time for HIV to progress into AIDS. But treatment can cause side effects. Some of these side effects include:
- Changes in how body fat is distributed on your body, called lipodystrophy (lip-oh-DISS-truh-fee)
Eating healthy foods and preparing them safely is especially important for someone with HIV/AIDS. A healthy diet can help you keep a healthy weight and immune system. A good diet can even help the treatment work better. If you're having problems like a sore mouth, diarrhea, nausea, or vomiting, or if treatment has affected your sense of taste or your appetite, eating right might be tough. Talk to your doctor or nurse for help. He or she may recommend that you see a nutritionist.
Alcohol and drug use is common among people infected with or at risk of getting HIV infection. Using alcohol or drugs can impair judgment and lead to risky behaviors. This puts people in danger of getting or giving HIV. Even if you already have HIV, using drugs puts you at risk of being infected with other strains of HIV, or with other diseases, like hepatitis C and tuberculosis. Drug and alcohol use also can interfere with your treatment. Your treatment might not work as well, you might have worse side effects, or you might forget to take your medicine. Substance abuse also can lead to mental health problems or make them worse. Talk to your doctor if you can't stop using drugs or alcohol. Your doctor can help you find a drug or alcohol treatment plan that will work with your HIV treatment.
People who are HIV-positive need different vaccines than people the same age who don't have HIV. Some vaccines, such as the flu vaccine, are more important to get because you have HIV. You need to prevent from getting an infection your body can't fight. An infection could make your HIV worse. Other vaccines, such as the measles vaccine, may be more harmful if you have HIV and your immune system is not working well. Talk to your doctor about which vaccines you need and which to avoid. Learn more at vaccines.gov.
If you are HIV-positive, you might be focused on your HIV treatment and think less about your overall health. But thanks to treatment, many people with HIV are living long lives. This also means that as women with HIV age, they will face health problems common in all older women. These problems include heart disease, diabetes, high blood pressure, osteoporosis, arthritis, and some cancers. Ask your doctor what you can do to lower your risk of other health problems. Ask what preventive screenings you might need. There are many things you can do on your own to prevent diseases and other health problems. Not smoking, maintaining a healthy weight, making healthy food choices, and exercising are all good steps. Keep in mind that HIV is only one aspect of your overall health.
Explore other publications and websites
Caring for Someone With AIDS at Home — This publication provides information on HIV/AIDS, referral sources, and pointers on taking care of people with AIDS and guarding against infections.
Coping With an HIV Diagnosis (Copyright © American Academy of Family Physicans) — This fact sheet provides information on how to cope with an HIV diagnosis and ways to take care of yourself.
Food Safety for People With HIV/AIDS — This publication outlines the special attention that people with HIV/AIDS should give to certain foods and food preparation because of their vulnerability to illnesses.
How Do I Start? (Copyright © AIDSinfonet.org) — This publication provides a starting point for people newly diagnosed with HIV. It includes information on what HIV is, the importance of HIV treatment, and where to go for help.
Keeping Up With Your Meds (Adherence) (Copyright © Project Inform) — This publication talks about the importance of following an HIV treatment plan and provides tips to keep up with taking one's medication regularly.
Living With HIV/AIDS — This booklet is for people who are HIV-positive. It can help you and your loved ones understand HIV and its effects on health and everyday life.
Nutrition (Copyright © AIDSInfoNet) — This fact sheet explains the importance of good nutrition and barriers to healthy eating faced by people with HIV/AIDS. It also lists nutrition guidelines for people with HIV/AIDS.
Strategies for Maintaining Your General Health (Copyright © Project Inform) — This publication offers a framework for thinking about the big picture of well-being, with an HIV diagnosis as only one component of overall health.
Connect with other organizations
Divisions of HIV/AIDS Prevention, CDC, HHS
Family Caregiver Alliance
HIV/AIDS Programs, HRSA, HHS
Hospice Foundation of America
National Family Caregivers Association
Content last updated July 1, 2011.
Resources last updated July 1, 2011.
A federal government website managed by the Office on Women's Health in the Office of the Assistant Secretary for Health at the U.S. Department of Health and Human Services.
200 Independence Avenue, S.W. • Washington, DC 20201