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The FASD Center links to a broad range of organizations and resources with FASD
information. We encourage sites with an interest in FASD to link to us.
Table of Contents
Federal Agencies
National Organizations
State Organizations
International Organizations
Treatment and Referral Resources
Family and Support Groups
Research Organizations
Federal Agencies
Substance Abuse and Mental Health Services Administration (SAMHSA)
The Substance Abuse and Mental Health Services Administration's (SAMHSA) mission
is to reduce the impact of substance abuse and mental illness on America's communities.
In order to achieve this mission, SAMHSA has identified 8 Strategic Initiatives
to focus the Agency's work on improving lives and capitalizing on emerging opportunities.
SAMHSA was established in 1992 and directed by Congress to target effectively substance
abuse and mental health services to the people most in need and to translate research
in these areas more effectively and more rapidly into the general health care system.
Over the years SAMHSA has demonstrated that – prevention works, treatment is effective,
and people recover from mental and substance use disorders. Behavioral health services
improve health status and reduce health care and other costs to society. Continued
improvement in the delivery and financing of prevention, treatment and recovery
support services provides a cost effective opportunity to advance and protect the
Nation's health.
SAMHSA Store
SAMHSA has a new “store” for your publications and product needs–manuals, brochures,
videos, public service announcements, and more. Find resources by substance, condition, or
research topic area. Thereare hundreds of useful topics to choose. If you can’t find what
you’re looking for, call SAMHSA at 1-877-SAMHSA-7 for assistance 24/7.
SAMHSA’s new Store replaces the National Clearinghouse on Alcohol and Drug Information, the
National Mental Health Information Center, and the SAMHSA Health Information Network.
Native American Center for Excellence (NACE)
Resource Library
NACE is a national resource center for up-to-date information on American Indian and Alaska Native
(AI/AN) substance abuse prevention programs, practices, and policies. An initiative of the Substance
Abuse and Mental Health Services Administration (SAMHSA), NACE also provides training
and technical assistance support for urban and rural prevention programs serving
AI/AN populations. For more information on NACE programs and initiatives, please
visit the Resource Library.
Stop Underage Drinking
StopAlcoholAbuse.Gov is a comprehensive portal of Federal resources for
information on underage drinking and ideas for combating this issue. People interested
in underage drinking prevention–including parents, educators, community-based
organizations, and youth–will find a wealth of valuable information here.
Centers for Disease Control and Prevention (CDC)
CDC is the nation′s premier health promotion, prevention, and preparedness agency and a global leader
in public health. It remains at the forefront of public health efforts to prevent and control
infectious and chronic diseases, injuries, workplace hazards, disabilities, and
environmental health threats. CDC is globally recognized for conducting research
and investigations and for its action-oriented approach. CDC works with states and
other partners to provide a system of health surveillance to monitor and prevent
disease outbreaks (including bioterrorism), implement disease prevention strategies,
and maintain national health statistics.
CDC FASD Site
CDC addresses fetal alcohol syndrome (FAS) through the activities of its
FAS program,
which focuses on prevention. In addition,
diagnostic guidelines 
are now available online in
PDF format.
Women and
Alcohol 
Over 25% of adults over age 15 drink alcohol at risk levels more than 4 times per year. At-risk alcohol use
results in multiple health effects, including unplanned pregnancy, sexually transmitted infections,
altered fertility, menstrual disorders and breast cancer, and a greater risk of
psycho-social problems such as loss of primary relationships, sexual assault and
depression. This web site includes clinical tools for screening and brief intervention,
educational materials for the clinician, patients and the general public, a wide
array of resources including a treatment locator, and up to date news and journal
articles. This web site is supported through funding from the Centers for Disease
Control and Prevention, National Center on Birth Defects and Developmental Disabilities.
National Institute on Alcohol Abuse and Alcoholism (NIAAA)
NIAAA supports research to improve diagnosis and assessment of impairment and disability and to develop
tools to enhance academic and daily living skills. Areas of research include screening,
diagnosis, and treatment of FASD.
Alcohol Policy Information System
The Alcohol Policy Information System provides information on alcohol-related Federal and State
policies. It is sponsored by the National Institute on Alcohol Abuse and Alcoholism
as a tool for researchers.
Interagency Coordinating Committee on Fetal Alcohol Syndrome (ICCFASD)
ICCFASD is hosted by the National Institute on Alcohol Abuse and Alcoholism.
It includes representatives from various branches of the Department of Health and
Human Services, and the Departments of Education and Justice. ICCFASD members work
to exchange information and coordinate Federal FAS strategies and programs. Here are some of their most recent announcements:
The Office on Women's Health (OWH)
The Office on Women's Health (OWH) was established in 1991 within the U.S. Department of Health and Human
Services. Its Vision is to ensure that "All Women and Girls are Healthier and Have a Better Sense of Well
Being." Its mission is to "provide leadership to promote health equity for women and girls
through sex/gender-specific approaches." The strategy OWH uses to achieve its mission
and vision is through the development of innovative programs, by educating health
professionals, and motivating behavior change in consumers through the dissemination
of health information.
Women's Health Resources Alcohol, Tobacco, and Substance Abuse
This resource was created in a partnership between the National Library of
Medicine Outreach and Special Populations Branch and the National Institutes of
Health Office of Research on Women’s Health. The purpose of this page is to
present topics pertaining to women’s health collected to support the mission
of the Office of Research on Women’s Health to promote research in the field.
Health Resources and Services Administration (HRSA)
Maternal and Child Health Bureau (MCHB)
Within the Maternal and Child Health Bureau, the Division of Perinatal Systems and Women's Health conducts
activities related to FAS prevention.
Indian Health Service (IHS)
The Indian Health Service Behavioral Health Program strives to eliminate alcoholism and other drug
dependencies and improve the health care of American Indians and Alaska Natives.
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National Organizations
The Arc of the United States
The Arc, a network of more than 700 state and local chapters
across the country, is a leading national resource for people with intellectual
and developmental disabilities. A member of the CFE’s Expert Panel, the Arc
implements a number of programs funded by grants and other sources, including: the
Self-Advocates with FASD in Action (SAFA), supported by SAMHSA; the School to Community
Transition Initiative for youth with intellectual and developmental disabilities;
and the eXplore eRecycling Initiative to help support employment opportunities in
the e-recycling fields for people with intellectual and developmental disabilities.
SAFA, which includes over 20 members, is a new initiative to connect people with
FASDS, improve quality of life for people with FASDs, and educate others about FASD
and how to prevent it through the work of the SAFA members.
The
American Congress of Obstetricians and Gynecologists (ACOG)
Founded in 1951 in Chicago, Illinois, ACOG has over 52,000 members and is the nation's leading group of
professionals providing health care for women. Now based in Washington, DC, it is a private, voluntary,
nonprofit membership.
Court
Appointed Special Advocates for Children (CASA)
The National CASA Association is a network of 946 programs that are recruiting, training and supporting volunteers
to represent the best interests of abused and neglected children in the courtroom
and other settings.
CASA volunteers are appointed by judges to watch over and advocate for abused and neglected children, to make sure they don’t
get lost in the overburdened legal and social service system or languish in inappropriate
group or foster homes. Volunteers stay with each case until it is closed and the
child is placed in a safe, permanent home. For many abused children, their CASA
volunteer will be the one constant adult presence in their lives.
Zero to Three
Zero to Three is the National Center for Infants, Toddlers, and Families. As such,
it is a leader in early childhood development and provides a range of support to
state administrators and local providers across a range of disciplines who work
to improve the lives of infants and toddlers. Zero to Three also funds a range of
grants that address FASD, including: the Safe Babies Court Teams Project which involves
specialized courts and community court teams that develop strategies to support
children, including those with FASD and their mothers. These teams are currently
active in 10 sites across the country, including: Cherokee, North Carolina; Des
Moines, Iowa; Douglasville, Georgia; Hattiesburg, Mississippi; Honolulu, Hawaii;
Little Rock, Arkansas; New Haven, Connecticut; New Orleans, Louisiana; Omaha, Nebraska;
and San Francisco, California. Zero to Three provided a presentation on the strategies
used in this program at the CFE’s BFSS Conference in 2012.
March of Dimes
Birth Defects Foundation March of Dimes researchers, volunteers, educators, outreach
workers, and advocates work together to address prematurity, birth defects, and
low birthweight.
National Organization on Fetal Alcohol Syndrome (NOFAS)
NOFAS isa nonprofit organization dedicated to eliminating alcohol-related birth defects
and improving the quality of life for individuals with FASD and their families.
National Association for Children of Alcoholics (NACoA)
The mission of the NACoA is to advocate for all children and families affected by alcoholism and other drug
dependencies. They help kids hurt by parental alcohol and drug use by working to
raise public awareness; providing leadership in public policy at the national, state,
and local levels; advocating for appropriate, effective and accessible education
and prevention services; and facilitating and advancing professional knowledge and
understanding.
National Birth Defects Prevention Network (NBDPN)
NBDPN is a group of individuals involved in birth defects surveillance, research, and prevention.
The State directory provides contact and program information, including FASD surveillance
information.
National Council on Alcoholism and Drug Dependence (NCADD)
NCADD fights the stigma and the disease of alcoholism and other drug addictions. Activities include
community prevention and education, advocacy, and resource centers.
National Healthy Mothers, Healthy Babies Coalition (HMHB)
HMHB promotes public awareness and education about prenatal health, develops networks for sharing information, and distributes
public and professional education materials.
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State Organizations
Alaska Office of Fetal Alcohol Syndrome
Alaska's FAS project is a comprehensive, integrated effort encompassing FASD prevention, screening,
diagnosis, and services.
Colorado Fetal Alcohol Syndrome Prevention Program
The Fetal Alcohol Syndrome/Alcohol Tobacco and Other Drug Prevention Outreach Project (POP) is a collaborative effort involving
numerous community sectors and health, education, social service, law enforcement,
and community groups.
Michigan Department of Community Health Fetal Alcohol Syndrome Program
The goals of the fetal alcohol syndrome (FAS) program are to reduce cases
of FAS, provide timely diagnosis, and assist with needed support services. Services
are provided through Centers of Excellence, community outreach and education projects,
and training and consultation.
Minnesota Organization on Fetal Alcohol Syndrome (MOFAS)
The University of Washington’s Fetal Alcohol and Drug Unit and The Minnesota
Organization on FAS (MOFAS) are two leaders for diagnostic services related to FASD.
They serve as key resources nationwide and regionally for information on FASD diagnostic
services as well as provide diagnostic services within their own regions. In addition,
these two entities have been involved in programs that have been implemented in
their states as well as nationally. The University of Washington is the developer
of the Parent-Child Assistance Program (P-CAP) which is being implemented across
the State of Washington, and also was involved in SAMHSA’s CFE initiative
in California and Michigan. MOFAS was the first state organization solely designated
to address FASD in 1998. The CFE has collaborated with MOFAS on the development
of a curriculum for juvenile justice personnel (“Tools for Success”)
and has collaborated with both MOFAS and the Women’s Services Coordinator
of the Minnesota Department of Human Services (DHS) in improving outcomes for women’s
residential substance abuse treatment and recovery programs by identifying women
with a possible FASD, modifying their treatment approaches, and identifying children
of these women who may also have an FASD. MOFAS is a leader in diagnostic services.
New York State Office of Alcoholism and Substance Abuse Services (OASAS)
This site includes information on FASD, model programs, resources, links, news items, and
a calendar.
Ohio's FASD Initiative
The Ohio FASD Statewide Steering Committee is a partnership that includes representatives from 9 state agencies,
3 universities, providers and parents. Our mission is to establish efficiency in
state systems resource allocation, coordination of services, and augmentation of
available resources to address FASD. www.notasingledrop.org
is
Ohio's Web site about Fetal Alcohol Spectrum Disorders (FASD). The mission of Ohio’s FASD Web site
is to educate the public, women, parents, educators, physicians and others about
the consequences of drinking while pregnant and to provide a state-wide system of
care to those affected by FASD.
Texas Office for Prevention of Developmental Disabilities (TOPDD)
TOPDD coordinates activity among the many State and private agencies that work to prevent developmental
disabilities. TOPDD appointed the Fetal Alcohol Syndrome Consortium to address public awareness and
education about fetal alcohol syndrome.
Washington State Fetal Alcohol Syndrome Interagency Work Group (FASIAWG)
FASIAWG was established in 1995 to coordinate and enhance Washington State FASD screening, diagnosis,
intervention, prevention, surveillance, and training programs. The FASIAWG represents a diverse spectrum of
programs designed for individuals with FASD and their families. This network of educational, research,
and clinical services responds to the legislative mandate to ensure coordination of identification,
prevention, and intervention programs for children who have FASD and for women at high risk of having
children with FASD.
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International Organizations
Australian National Organization for Foetal Alcohol Syndrome and Related Disorders
(NOFASARD)
This site provides brochures and reports on fetal alcohol spectrum disorders, including information specific
to Australia.
Canadian Northwest FASD Partnership
This is a partnership site for seven Canadian provinces that work on FASD prevention,
intervention, care, and support. It includes highlights of campaigns and initiatives,
FASD events, regional researchers, and messages from all seven provincial Premiers.
European Birth Mother Support Network
The European Birth Mother Support Network is a network of women who drank alcohol during pregnancy and may have a child or
children with Foetal Alcohol Spectrum Disorders (FASD). The network is a place where
mothers can share their experience and support each other. Our goal is to educate,
increase understanding and support for birth mothers in Europe.
FAS Aware UK
This site is designed to raise awareness and provide information and support for people
affected by or interested in fetal alcohol syndrome.
FAS Europe Luxembourg
This site provides information on fetal alcohol spectrum disorders in English, French,
and German.
FASLink
FASlink is the Canadian Fetal Alcohol Syndrome Internet support, information,
advocacy, and discussion forum. FASlink maintains a discussion listserv serving
hundreds of families and professionals across Canada and in other countries. FASD
Northwest This site is for a community action circle for northwestern Ontario, Canada,
that includes sections on FASD facts, alcohol and pregnancy, service providers,
resources, events, news, and links.
Fetal Alcohol Network New Zealand (FANNZ)
The people who make up the Fetal Alcohol Network New Zealand come from within families
living with fetal alcohol spectrum disorder (FASD) and a wide range of professionals
involved with the health, education, justice and social services sectors. Through
its contract with the New Zealand Ministry of Health, Alcohol Healthwatch supports
the coordination of the FANNZ network and related activities. Alcohol Healthwatch
is a Charitable Trust that works to reduce alcohol related harm in communities through
effective health promotion. FANNZ communication is maintained through a monthly
email update and periodic meetings to advance community action and support.
Fetal Alcohol Spectrum Disorders and the Justice System
The FASD Ontario Justice Committee (members of the FASD Stakeholders of Ontario) has developed this website with funding
from the Public Health Agency of Canada, as a resource for justice system professionals
and others who are grappling to understand FASD. We hope that this website will
put case law, legal resources, background information, and practical tips close
at hand. We also hope that it will offer strategies for dealing with the unique
problems presented by offenders, victims and witnesses with FASD in compassionate,
fair and effective ways.
Fetal Alcohol Support Ireland
FAS Ireland is dedicated to raising awareness about FASD, helping to reduce the incidence of FASD, and
supporting families, caregivers, and individuals affected by FASD.
Fetal Alcohol Syndrome Meet Up
This site provides a way for individuals to meet up with other local parents and caregivers of children with
FAS.
National Database of FAS and Substance Use During Pregnancy Resources (Canada)
This is a database of Canadian resources related to prevention, intervention, and identification of fetal
alcohol syndrome and other substances that can harm fetal development.
Netherlands Fetal Alcohol Syndrome Foundation
The Netherlands FAS Foundation provides information about FAS to the public, provides
information about FAS and support to families and caregivers, brings concerns to
the attention of the government, institutions, and companies, and promotes scientific
research. The site is available in Dutch (Nederlands).
Provincial Outreach Program for FASD
The mandate of the Provincial Outreach Program for FASD is to increase
teachers' capacity to meet the educational needs of students with an FASD. Their
goals include building district capacity to serve students in their home school
districts, facilitating the sharing of best practices, developing online capacity,
and serving as a liaison to government agencies.
Réseau de Prévention du Syndrome d'Alcoolisation Foetale
Seulement en français. Site is available only in French. The site has various resources related to fetal
alcohol spectrum disorders and is run by Dr. Thierry Maillard of the island of Réunion.
Region 6 FASD Committee
This site includes a compilation of resources and links to services in Region 6 and across
Canada. Region 6 (also known as the Capital Region) includes Edmonton, St. Albert,
Mornville, Sherwood Park, Fort Saskatchewan, Leduc, Devon, Spruce Grove, Stony Plain,
and many other smaller communities. The Region 6 FASD Steering Committee is made
up of members from many different service organizations and government departments.
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Treatment and Referral Resources
Substance Abuse Treatment Facility Locator
The Substance Abuse and Mental Health Services Administration provides this online resource.
The treatment facility locator lists private and public facilities that are licensed,
certified, or otherwise approved.
CAPTS
SAMHSA's Collaborative for the Application of Prevention Technologies (CAPT) is a national substance abuse prevention training
and technical assistance (T/TA) system dedicated to strengthening prevention systems
and the nation’s behavioral health workforce. For information on other prevention
resources, please visit www.samhsa.gov/prevention.
CHOICES
Project CHOICES targets women at risk of having an alcohol-exposed pregnancy before they become
pregnant. Most women do not realize they are pregnant until well into the first
trimester, and many drink alcohol during this time. Project CHOICES focuses on reducing
drinking and preventing pregnancy through contraception with women 18 to 44 who
are sexually active and drinking alcohol at risk levels (eight or more drinks per
week or four or more drinks on one occasion). Project CHOICES uses a four-session
intervention to achieve its results. For more information on the intervention and
available resources, please visit Project CHOICES (Centers for Disease Control and Prevention)
www.cdc.gov/ncbddd/fasd/research-preventing.html
and www.cdc.gov/ncbddd/fasd/freematerials.html.
Screening and Brief Intervention (SBI)
This program, developed by Mary O’Connor and Shannon Whaley (2007) with a grant from the National Institutes of
Alcohol Abuse and Alcoholism (NIAAA), found significant results in providing screening and brief
interventions to women who report drinking during pregnancy. Training and Technical Assistance resources are
available at www.phfewic.org or by contacting projects@phfewic.org. Screening forms and brief intervention
manuals are also available for download in English, Spanish, Vietnamese, and Chinese at no cost at
www.phfewic.org/Projects/Care.aspx
.
Parent-Child Assistance Program (P-CAP)
The Parent-Child Assistance Program (P-CAP) uses an intensive paraprofessional home visitation model to
reduce risk behaviors in women with substance abuse problems over a three-year period. The focus is not
simply on reducing alcohol and drug use, but also on reducing other risk behaviors and addressing the health
and social well being of mothers and their children. For more information, contact Therese M. Grant, Ph.D.,
Director, granttm@u.washington.edu or visit the Parent-Child Assistance Program (Fetal Alcohol and Drug Unit,
University of Washington): depts.washington.edu/pcapuw/ .
CDC Regional Centers
Five university-based Fetal alcohol Spectrum Disorders (FASD) regional training centers
(RTCs) have been funded for a three-year cooperative agreement (2008–2011) to develop, implement, and
evaluate new training programs, and/or enhance current training programs for medical
and allied health students and practitioners regarding the prevention, identification,
and treatment of fetal alcohol spectrum disorders (FASDs). Four RTCs were previously
funded from 2002–2008. These four former RTCs developed seven core competencies
in collaboration with CDC and with the National organization on Fetal alcohol Syndrome
(NOFAS) as well as the FASD Competency Based Curriculum Development Guide for Medical
and Allied Health Education and Practice, available at
www.cdc.gov/fasd.
The new RTCs will be expanding upon the prior RTCs’ efforts and reaching new geographic
areas and audiences.
Bruin Buddies Volunteer
Program Friendship training: Many children with FASDs have difficulty making friends, keeping friends, and
engaging in social interaction with others. This type of training teaches a variety of skills, including
how to interact with friends, how to enter a group of children already playing with
each other, help with in-home play dates, and ways to avoid conflict and use negotiation
skills. A research study called "Project Bruin Buddies" evaluated this type of training
and found that it could significantly improve children's social skills and decrease
problem behaviors.
This program is designed specifically for the UCLA community
who desires to do college outreach to middle school and high school students from
educationally disadvantaged backgrounds.
Addiction Technology Transfer Center National Office
The Addiction Transfer Technology Center Network is dedicated to identifying
and advancing opportunities for improving addiction treatment. The vision is to
unify science, education and service to transform the lives of individuals and families
affected by alcohol and other drug addiction.
One Sky Center, The American Indian/Alaska Native National Resource Center for Substance Abuse
The mission of the One Sky Center is to improve prevention and treatment of substance abuse among Native
people, by promoting culturally appropriate services, identifying and disseminating evidence-based
practices, and providing training and technical assistance.
Online Clinic
The Online Clinic has information on books, Web sites, and other resources and patient referrals.
Various tools are available, including an online calculator for estimating costs
of FASD in your community.
FASD Screening and Diagnosis
The Washington State Fetal Alcohol Syndrome Diagnostic & Prevention Network (FAS DPN) is a network of
FASD diagnostic clinics linked by the core clinical/research/training clinic at the Center on Human
Development and Disability at the University of Washington in Seattle, WA. Each clinic in the network uses
the 4-Digit Diagnostic Code as the diagnostic method. The mission of the FAS DPN is primary and secondary
prevention of FAS through screening, diagnosis, intervention, training, education, and research.
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Family and Support Groups
Birth Mothers Network -
Circle of Hope
The Birth Mothers Network (BMN) was established to support and serve birth
families affected by Fetal Alcohol Spectrum Disorders (FASD). Their vision is to
become a strong national network that will work to mentor women who are struggling
with addiction and with the issues of having a child or children with an FASD; their
mission is to increase understanding and support for birth mothers and to strengthen
recovery for women who drank during their pregnancies, as well as to support their
families, and their goals are to (1) improve and strengthen the lives of birth families,
(2) provide peer support for birth families, and (3) decrease the stigma, blame,
and shame that birth families may experience.
In support of the BMN's efforts, NOFAS sponsors The Circle of Hope (COH) for women in recovery from
drug and/or alcohol addiction who have a child/children with an FASD. They refer to these women as "Warrior
Moms."
Self Advocates with FASD in Action Network (SAFA)
The self advocacy group was initially established to build and support a network of people with FASD to
organize, attend, and help facilitate a self-advocacy track at the annual Building
FASD State Systems (BFSS) Conference. The conference supports the Center's legislative
mandate to provide technical assistance to communities developing FASD systems of
care. In March 2011, The Arc and the Center worked together to formally establish
the Self Advocates with FASD in Action (SAFA) Network.
FAS Community Resource Center
The FAS Community Resource Center offers resources related to FASD, such as support
groups for families, playgroups for children with FASD, advocacy, materials and
training for families and professionals, consultation, and collaboration with community
organizations.
FASEout Training Modules (FASEout)
Canadian Institute of Child Health (CICH)
FASEout Training Modules is part of the Canadian Institute of Child Health. This
site provides PowerPoint training modules used in the FASEout Project and are provided
for your use in training. FASEout, presentations have speaking notes and we encourage
you to adapt this material for your own use. Additional presentations are included
for informational purposes only. All presentations require a familiarity with the
subject.
FASworld
FASworld is an international alliance of parents and professionals
dedicated to the prevention of fetal alcohol spectrum disorders. FASworld Canada
works with the
Fetal Alcohol Syndrome Community Resource Center in Tucson to coordinate
work in worldwide awareness.
Text4Baby
To help more pregnant women and new moms get information about caring for their health and
giving their babies the best possible start in life, the National Healthy Mothers,
Healthy Babies Coalition (HMHB) launched text4baby, the first free health text messaging service in
the U.S. Text4baby supports moms by providing accurate, text-length health information and resources
in a format that is personal and timely, using a channel she knows and uses. Over
85% of Americans own a cell phone and 72% of cell users send or receive text messages.
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Research Organizations and Universities
Association of University Centers on Disabilities (AUCD)
AUCD (formerly the American Association of University Affiliated Programs
for Persons with Developmental Disabilities) is a nonprofit organization that promotes
and supports the national network of university centers on disabilities.
Center on Alcoholism, Substance Abuse, and Addictions, University of New Mexico (CASAA)
CASAA conducts various research projects, including projects related to FASD. In
addition, CASAA supports the
Fetal Alcohol Syndrome Prevention Project ,
which coordinates public education campaigns, community projects, and social change and advocacy efforts.
Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD)
The purpose of this consortium is to inform and develop effective interventions and treatment
approaches for FASD, through multidisciplinary research involving basic, behavioral
and clinical investigators and projects. We hope to develop an infrastructure to
foster collaboration and coordinate basic, clinical and translational research on
FASD. We welcome your input and your feedback.
Fetal Alcohol and Drug Unit, University of Washington
The Fetal Alcohol and Drug Unit is a research unit focused on prevention,
intervention, and treatment of fetal alcohol syndrome and other alcohol-related
birth defects.
Maternal Substance Abuse and Child Development Project, Emory University
The mission of the Maternal Substance Abuse and Child Development Project is to
provide education and support to caregivers and professionals to prevent problems
due to prenatal alcohol and drug exposure and to further the scientific understanding
of the effects of exposure.
National Center for Education in Maternal and Child Health, Georgetown University (NCEMCH)
NCEMCH provides national leadership program development, education, and knowledge to improve the
health and well-being of the Nation's children and families.
Organization of Teratology Information Specialists (OTIS)
OTIS is dedicated to providing accurate evidence-based, clinical information
to patients and health care professionals about exposures during pregnancy and lactation.
The organization serves to provide education, to conduct relevant research and to
support teratology information services throughout North America.
Research Portfolio Online Reporting Tool Expenditures and Results (RePORTER)
RePORTER is an electronic tool that allows users to search a repository of NIH-funded research projects and
access publications and patents resulting from NIH funding. Information found in
RePORTER, including projects related to fetal alcohol syndrome and effects of alcohol
on the fetus, and it is drawn from several databases–eRA databases, Medline, PubMed
Central, the NIH Intramural Database, and iEdison.
Research Society on Alcoholism Fetal Alcohol Syndrome Study Group (RSoA)
The FAS Study Group's members include approximately 150 clinicians and researchers. The group focuses
on the etiology of fetal alcohol syndrome, characteristics of fetal alcohol spectrum disorders (FASD),
and ways to improve the lives of children with FASD.
Washington State Fetal Alcohol Syndrome Diagnostic & Prevention Network (FAS DPN)
The FAS DPN is a network of four WA State community-based interdisciplinary FASD diagnostic clinics
linked by the core clinical/research/training clinic at the Center on Human Development and Disability
at the University of Washington in Seattle, WA. Susan J. Astley, Ph.D., Professor
of Epidemiology/Pediatrics, is the Director of the FAS DPN. The network was established
in 1993 through Washington State Senate Bill 5688 and support from the CDC, March
of Dimes, Chavez Memorial Fund, and WA State Department of Social and Health Services.
Each clinic in the network uses the same interdisciplinary approach to diagnosis
and the same systematic diagnostic method-the 4-Digit Diagnostic Code. The WA State
FAS DPN began diagnosing patients in 1993 and has diagnosed over 2,500 patients
to date.
The mission of the FAS DPN is FASD prevention through FASD screening, diagnosis,
intervention, research, and training.
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